BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Well thank you Angelica for your kind words, i truly feel very humbled that you have followed my story for so long and am glad you have gained from it. It is always nice to hear from people who I havnt spoken to before. Im sorry your neighbour died so young and indeed it does put things in to perspective. I thought I was young at 47 when first diagnosed until I came on this site and chatted to Antmum, the mother of a ten year old who had kidney cancer like myself. Very sadly he died and it really does make you realise how lucky you are.
Last night I slept well after a bit of a shaky start as I felt sick as I lay down so It did take a while for me to settle. This morning though I felt OK although I must admit not in the mood for work. After delaying the getting out of bed bit for as long as I possibly could I relented and fell out of bed and into the shower. The first thing i did was to squirt shower gel in my eyes so I ended up going to work with red sore eyes. Linda drove me to work and once there I soon got in the swing of things and churned out loads of paperwork. old habits die hard, now home and fed I'm ready for a bit of a sleep but not before we took down the Xmas tree and decorations. I now feel a bit wobbly so have had enough for the day. I am watching EastEnders to cheer myself up, well actually to put myself to sleep for an hour. I have decided to spread my working days so I always get a day off after working a day.
oooooooo Bob - are Farley's Rusks still on the menu for sproglets?????? I thought they'd been banished along with all other nursery comfort foods???? Surely he would have used one of the weights from his 'baby gym'??
Bob.......... I agree with Kate that a knighthood should be awarded to you for your inspirational musings on here.............so arise Sir Bob of Mac-land and carry on inspiring us.........xxx
Hello, Sir Bob, just popped in to check you are still ok......we haven't yet got the promised snow, so are just keeping warm indoors, having stocked up in the shops in case we get bad weather......
We are fine and also have not had the promised snow, though im not disappointed, my tobogganist days are well and truly over exept fpr when Mollie pulls me over in the snow and I slide gracefully on my bum. never mind, we are off out for tea now at the local. Hope you both are well. I feel pretty good again today and ready for work tomorrow, I think!!
I have just read your whole post, and I hope you are well. Havent ever been in your position so dont feel like anything i can say will do justice other than you seem like an amazingly strong man and I wish you all the luck in the world.x
I am very well at the moment and have had a very good day. After a real good nights sleep I was picked up early to go and look at an electrical job in Cambridge before heading back to the office to type up a quote. Job done then it was back to the important job of invoicing before leaving work to get home. I have just had a huge tea of toad in the hole and have waddled in to the lounge to sleep it off. I started my next cycle of Sutent today, cycle four of the second phase and hopefully should have at least another two weeks of feeling ok before my two bad weeks kick in. I will be more prepared this time and will start taking the side affect drugs well before they kick in. Another day off work tomorrow before the last one of the week on Friday.
Not too much snow here Helen, much to Kate's disappointment, she has gone off to school. I had a really good nights sleep and an equally good lay in bed this morning, in fact only just had breakfast. Not too much planned today, Kate has her therapy session booked for after school today and we have been sorting a few bits out around the house. I am back in to work tomorrow when the main man from head office will be down so it will be interesting to see what he has to say. I feel better for spreading my work load out so I get a day off in between work days. I'm not sure if we will get more snow today as at the moment it is really sunny and bright, so far we seem to have escaped the worst of it.
