BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Helen and Kaz,  would you believe that even my doctor today called me a stubborn old bugger, then he said you carry on being stubborn. That made me laugh.  The visit to the hospice was ok and it was not long before the person i was speaking too, yes would you belive it, she said I was stubborn. I get the message, and no Kaz, no way will I change.

    She gave me an outline of what the hospice can offer and I have agreed to a six week stint at one day per week. Once home, as Linda has been really busy running Kate about for her after school clubs I cooked a roast for tea. It is  Lindas mum's birthday so we invited them round. Tea was fine but im well tired now. Tomorrow we have Kates sports day.

  • That stubborn streak has done you proud so far, Sir Bob, so you just carry on! I'm sure Lady Linda wouldn't have you any other way! 

    love and hugs to you all, hope Kate has a fine sports day, the forecast doesn't look too wonderful! 

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Enjoy your sports day Katie, (there'll be two very proud parents watching and cheering you on!)

    xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Sports day was good but eventful as well. Kate did ok in her races and considering she is not sporty, seemed to enjoy it. I took my wheelchair as an aid to walking and to sit and watch the races but was a bit gobsmacked when a friend came up and asked to borrow it as his mother in law had slipped and hurt her leg. Linda and a friend wheeled her out to their car and took them to hospital and it turned out she had broken her ankle, ouch. So at least the chair was of some use to someone today. We then popped to Ely to have a bite to eat at coffee shop where daughter in law works so that was nice. Tonight im tired but have managed to water the garden as although rain has threatened all day, it did not come.A big day for all of us tomorrow, Kate catches the bus for her intake day at school. It is the first time she will have left the house on her own to board a bus.. Luckily the bus stop is pretty much opposite our house so we can watch her board ok. Im sure she will be fine once she has done it once, bless her.

  • FormerMember
    FormerMember in reply to FormerMember

    Well that was pretty emotional, not for Katie but definitely for me. On my facebook profile I have put that since being diagnosed, my main aim was to be alive for long enough to see Kate start secondary school. Ive just realised ive achieved that. If things were to take a turn for the worst after my brain scan results at least I have seen her off to school.

    I had a fair nights sleep, the cooler evening and night helped im sure. My hair is now trying to grow back as it has been three months since whole brain radiotherapy. Im glad the scan results will be after our holidays as I am a bit nervous of the results. If it hasn't worked, or if they reappear, there is not a lot they can do.  Linda is off on a well needed chat and walk with one of her friends, I hope to do a bit in the garden once the district nurse has checked my leg wound. Its struggling a bit to heal but thats because of the Sutent. 

     

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob,

    I am so pleased that Kate enjoyed her sports day at her new school, your post brought back so many memories when my daughter started secondary school, even though I work in education albeit  early years lo!

    I worried about the transition so much, all that worry was for nothing, she loved it and made such a good circle of friends, was never bullied and thrived in the education offered.

    Some of these friends have stayed with her even today, such lovely girls, and I believe their friendships will carry on through out their lives, she has now reached the ripe old age of twenty three lo!!!!

    What I am trying to say is, Kate (Not calling her little Kate any more) sounds a wonderful girl who will go from strength to strength in her new surroundings, so try not to worry love. She is going to love it I am sure of this.

    I am so pleased you reached your goal, and pray that there are many more goals reached in the future.

    Biggest and warmest of (((((((((((((((((((hugs))))))))))))))))))))))) to you and your lovely family.

    Love Maryxxxxx

     

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Mary, Like you say Im sure she is going to love it as well.

    Last night we went to a parents evening at the new school and everything looks and sounds brilliant. We also saw kate on a video when doing her sports day at the new school and she was laughing and really looking as if she was having a great time. I found the footage really emotional.

    Another good day today. After taking Kate to school, we met up with friends and went back to their house for coffee. Later we met again in cambridge to sample fine food at a great fish restaurant. It was good but not as good as fresh by the sea.

    We Then collected Kate from school. we also got her sat results and reports and they were brilliant results and an excellent report. Her teacher added the comments "I have thoroughly enjoyed teaching and getting to know Kate over the last year.I will really miss her but wish her all the best for the future.

    The headmaster put "I am so sad that Kate is leaving our school. She has been a real inspiration to all of us and good luck at your new school." Really nice personal comments, again, emotional reading for us both but we are so proud of her

    Tonight Linda and Kate are at Thetford forest seeing "whoever they are.  I am outside with my chimnea and enjoying a beer with Justin and Mat.

  • With reports like that, Kate will do well in her new school! I bet you are both so proud.

    love and hugs to you all

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    WELL DONE KATE!!!!! You are a star.Star

    Bob and Linda, you must be so very proud of your lovely girl, also take pride in your parental skills, behind every successful child there are two wonderful parents.

    Love to you all, have a good weekend.

    Maryxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob and Linda, being such great people you deserve your wonderful Kate, and bet she wouldnt swap you for anyone.....