BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Not a good start to the week. After awaking with more pain to my leg we decided to have a doctors home visit. He duly visited late morning and he gave me a good check over. He was fairly certain that I had a case of muscle spasm but could not rule out a D V T. He rang our hospital and arranged for us to be seen straight away. Matt was due to finish his shift so stayed and organised a wheelchair. We arrived there about half three and with Matts influence did not have to wait too long for the initial checks etc. . Well the ultrascan confirmed I indeed have a D V T buried deep within my left calf. The implications to my treatment is that I will almost certainly have to come off the Sutent so the thrombosis can be treated I have already had one injection of clexane and will return to the hospital tomorrow for follow up treatment. Obviously im disapointed but in some ways ready for a bit of a treatment break. Tomorrow we will be speaking to the Marsden to put them in the picture. Our journey has just got a whole lot harder.
So sorry you have DVT that is the last thing you need right now, maybe this break from treatment will give you some well needed energy and respite like you said. I hope so. Thinking of you. Sarah xx
