BOB JK My diary of kidney cancer (to be continued)
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Hi all, Well its been a funny old week but I am beginning to feel a bit better. The events of Monday are a bit vague to me but basically, after a really shitty end of last week and weekend. and as a result of seeing a Doctor I needed a wee sample on the Monday Morning. Well I shuffled to the loo and managed to prop myself up against the loo and pee in this undersized vessel (i wish) and actually managed to half fill it before collapsing. I awoke to Linda pulling my head out the toilet, and amazingly still holding my bottle of pee, upright. Somehow Myself and Linda got me to a chair in the bathroom and sat me on it. We were going to get back in the bedroom at that point but something made me say to Linda, No just leave me. I had my first fit,quickly followed by my second. Luckily at that point Matt came home from a night shift so was able to help. Linda soon got more help and Kate was taken care off. A doctor was called and the upshot is that I probably have some sort of infection causing havoc. As Linda has said i'm know on different antibiotics and Steroids and already feeling a bit better. Im still weak though and very unsteady on my feet. On Monday I really felt "is this it". Today im more hopeful. My Macmillan nurse has been round and was a help to Linda. I am eating a bit Today and without forcing Mollie to eat most of it, much to her disappointment. I have also been downstairs for a time which is really nice. Thank you all so much for your messages and when im feeling stronger I will try to catch up on your posts, Enjoy the good weather, im not allowed to, strictly big hats and shade.
Hi Bob, Linda and Katy I have followed your blog for about a year and been inspired by your strength and determination in your fight .I have popped back regularly to read your latest news and to check on your progress. My husband had cancer of the bile duct in 2007, but thankfully an operation seems to have worked (finger crossed) The events of this week have made me join your group so that I can tell you personally what a wonderful person you are,I can't believe that you are back as chirpy as ever fighting the fight. God bless you Bob, will carry on reading your wonderful diary.Very best wishes to you all.
Sorry to hear you are not feeling to good at the moment, I have not been on the site for a while so I have lost touch with what happening My mom's on her 3rd cycle of sutent at the moment she doing well she had her first CT last week and we go for the results on wednesday so we should know then if its spread anywhere else, god the wait is killing me its like going through the first results again all over again. when I wake up in a morning I keep having panic attacks. anyway I hope you feel better soon bob and have a great birthday party
Im getting there, Wendy, slowly but surely. Yesterday I spent a good part of the day outside after a really good nights sleep. After managing toast and coffee it seemed to set me up well for the rest of the day. I was a bit naughty as I did sit out a bit and at the end of the day Linda was not very pleased with me. My problem is im such a stubborn, headstrong bugger. I cant see that changing. Im definitely better on the eating front although not back to full rations yet. My tummy is sort of under control although sounding like a kitchen garbage gobbler most of the time. Yesterday morning we went for a short walk with me in my electric chair which was great, Kate went out with her friend and some people we know for a picnic, which was nice. Now she has a friend over from Buxton ready for her birthday party later . Her Birthday is on Wednesday. Linda has arranged her party at an activity centre and there are 13 girls and 3 boys going. It looks like another sunny day so will need my floppy hat and sun cream. I have had breakfast but now need to get up
Those of you who have grown to know Bob probably realise he did not just sit out in the sun, hence me not being very happy, its his blog and story, but just had to mention that!! He is experiencing a steroid high, long may it continue.
Really glad that you are so much better Bob, long may it continue. Hope that Katy has a lovely birthday party and that you and Linda have a lovely day. Looks like another hot one!!
Hi Bob, so pleased you are feeling better at last, hope your listening to Linda and doing as you are told !!!! remember Linda is the boss, we only let you men think they are sometimes. Hope Kate has a great birthday. Take care XX.
