AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
  • 10113 replies
  • 3 subscribers
  • 1277707 views
Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    Hi Teresa my likkle chicken,
    i'm sotty i wasn't about when you needed me and you can slap my wings for being a bad mother hen!!! haha I hope you are feeling better today babe, and anger is part of the grieving procaess so please don't be too hard on youreslf, and i'm sure your mum understands that. It's ptobably cos you haven't cried properly yet babe, i did say it comes out one way or another in the end. But it will be ok give yourself time and you have been so strong so far so well done bad, but we can only pretend to put on our 'i'm ok and doing fine' face on for so long before something gives in the end. I love you very much and hope i'm not making you feel worse as thats not the intention, i just want you to give yourself time and not be so tough on yourself thats all. I hope Michaela is feeling better and that she's back being a teenager very soon. How's you're mum? I expect you have both made up now. And my likkle surrogate nephew, hows he doing? Have Angie and James managed any sleep yet? Good on James being a Chelsea supporter, i like him already!! haha that means Sam will def have a Chelsea kit cos dads always win with football strips!! And we got another mini Chelsea supporter!!! yeah come on you blues!!!! haha
    Anyway babe better go as bit busy with postman at mo if you know what i mean!! God i didn't realise how much energy they had, must be all that walking!!! hahaha Kepp smiling babe i'm here for you if you need me love and hugs your mother hen mel xxxx
  • FormerMember
    FormerMember
    Mellymoo mother hen this is an sos call
    I think about you and you appear - like an angel
    Please pop over to chat there is a lady called Elizabeth a fellow carer, her thread - how do ?is getting caught up with the nonsense on here, please invite her over I was about to then you appeared and after all this is your thread...
    Sure when you read you will see where im coming from
    Love kate xxxxxxxxxxxx
  • FormerMember
    FormerMember
    Hi my likkle chicken Kate,
    i'm so sorry your mum has been having a bad time at the mo and hope she's her usual happy self soon. Plesase don't think you're thick as you're not. I just said to be prepared to help you, as i know what it's like having you're loved one keep going in hospital, as Darryl went back in many times. It's just bad luck babe but if she does end up back in hospital it's surprising how quickly they pick up isn't it? I just wanted you to be prepared for the worste case scenario thats all i didn't mean to make you feel like you was thick because you're not at all or you wouldn't be doing all you do so well and with so much care and love babe.

    I've also seen the posts on here that people send to each other and it's so very sad, but i can understand some peoples reactions, especially when they have benn picked on for no reason at all. This person is a wonderful lady and doing a great job of caring for her very sick hubby and gets loads of s**t that she don't deserve. i'm not mentioning any names as she knows who she is if she reads this, i'm just saying she didn't start anything and has always been there for people, and always puts others first. So no, i'm afraid i won't be going anywhere cos you don't get rid of me that easily i'm afraid!!!! I'm here forever, in your worst nightmares i will be there, when you wake up, or go to baed i will be there, through good times and bad i will be there! so afraid you'll never get rid of me now i'm afraid! hahaha

    Anyway babe got to go as postman keeping me busy if you know what i mean! Didn't realise how much energy they had must be all that walking they do!! hahaha You keep smiling babe you're doing a fab job. Love to you and the duracell bunny love hugs and easter eggs mother hen mel xxx
  • FormerMember
    FormerMember
    My likkle chicken Kate have done that for you. Hope she comes over as sure we can help her. Thank you for being so caring love and hugs mother hen mel xxx
  • FormerMember
    FormerMember
    Hi my likkle chicken Karen,

    So pleased the training is going well and that you are still enjoying it! I worked in a home for elderly mentally ill patients before and enjoyed it but sadley got attacked so many times that i had to leave in the end! thats me trying to boast your morale and make you feel better! haha But i'm sure it won't be like that for you as you sound like you're getting more training than i ever did, plus all the protacols have changed since i worked there so absolutly positive you will be fine. The main thing is that you are getting excellent training by the sound of it and at least won't be on your own the first few times so don't forget to ask lots of questions about each client you go to see by the carer you will be with. Especially things like what does the client like or not like, what routine does the carer usually do things in, and whether the client understands everything you say and do they have any hearing, sight or learning difficulties?
    I'm positive you will do a great job,but just be aware babe you will have good days and bad days where everything goes wrong, but that is normal and no reflection on the great carer you are, as we all have days like that even ones who are caring for their loved ones! I'm not trying to put you off doing this wonderful job, and really hope i haven't as i know you will be great at it. I just want to prepare you for what can happen, a bit like i did with Kate and her mum, not that i don't think it helped her either so maybe i should just shut up and not say anything!! hahaha
    Well babe i hope you have a nice rest of the week and i will be thinking of you. Best go now as the postman is still here, if you know what i mean! where do postmen get all there energy from must be all that walking hahaha be good cos i am! haha love and big hugs mother hen mel xxxx
  • FormerMember
    FormerMember

    Mother Mellymoo

    You are an angel in disguise, I was reading Elizabeths thread when you posted to chick Teresa( xxx ) and I think she could do with yours and the chicks advice, I know how much I rely on you three, Think this has now become the carers thread, Your advice to me Mel has always been wonderful so dont go explaining ok, I always worry about worrying, beat myself up about stuff and you all make me see sense, so glad you will always be there and visa versa, have sooo much respect for you
    I would hate to offend you or any of your friends think i know who you are talking about, lives overseas? yes I agree she seems lovely and I also think I know who the baddie is, well I really would have to be thick not too ha ha, Thats why I love this thread its just only ever been kindness, support and laughs, you put that postie down yet ?
    Got to go see to mum and as usual im waffling, hey to the girls, I will pop back so not tired tonight
    Kate xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

  • FormerMember
    FormerMember
    Mellymoo your advice did help a lot, I put my head in the sand as usual,
    I was told a couple of weeks ago by mums mac nurse to go for screening cos breast ,throat and lung cancer runs in the family, what do I do? put my head in the sand
    Im a little scared, know i would never be as tough as mum and not too sure if i wanna know, ive got too much on my plate as it is
    K xxxxxxxxxx
  • FormerMember
    FormerMember
    My dear likkle chiken Kate,
    thank you for your kind words you are too nice! haha I just have so much compassion for people that i really feel for them when they are having a bad time or suffering. It must be a gift!! hahaha Now my heads getting big mind you maybe i could eat the frankfurter and the banana at the same time now!! hahaha Sorry i'm being a bad mother hen again!!
    I hope you sleep well babe and have a better day with your mum tom. Yes the person does live abroad you are right. You sleep well and i'll try to let the postie go so you should have post as usual tom although he may be a bit late and look a bit tired! hahaha
    Nite babe sleep well love and hugs mother hen mel xxx p's I hope Elizabeth doesn't read this and get put off poor lady! xxxxx
  • FormerMember
    FormerMember
    hi mama hen
    r u ok tonight? x
  • FormerMember
    FormerMember
    Hi my likkle chicken Kate,
    sorry about that we seem to be posting at the same time! haha
    Babe i can totally understand your scared about getting screened, but just think if you do and you have signs then it will be at very early stages and probably be totally curable. The only problem with cancer is that most people don't know they have it untill the tumour is so large that it is interferring with other organs and thats tragic as many could be saved if everyone was screened before that happened! I understand your worry and concern but also understand if you'd rather not know. I can't really tell you what to do either way babe as the decision is totally yours, but i know if it was me, yes, i would be petrified, of that i'm sure but i would go for it as hopefully have a better suvival rate than leaving it until it was too late. Let me know what you decide to do and i'm here to offer you support all the way. I hope you have a good think and make the right decision for you. Love you loads send you a hugh (((((((((((((((hug))))))))))))) of comfort and support love and hugs mother hen mel xxx