Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
Thankyou for your care and support, what a carry on, I was so cross I asked the staff would they leave their own mothers in that state? my poor mum she was so poorly, just rang now and she has had a bad night so I did the right thing, Do you think Prince Bloody Philip would of got that treatment? Apologies to any royalists, just makes my blood boil, Sorry I missed you last night/this morn Donna managed to get a few hours sleep so feel a little more human-ish! District nurses due at 8>30 so had to get up to cancel them,
Hope everyone has a good day today, will post and catch up later
Kate I think you are within your rights to be angry, I agree with Donna regarding dignity and respect. Obviously lacking there. And why on earth would a Dr want her left in such a state, what possible use good would that do? Iam gald she is in and being helped. You might find drinking plenty of water/juice will help flush the caffeine out of your system and so hopefull relieve the headaches.
i am so sorry i wasnt here to support you last night my hunni, but fell asleep early. oh sweetie what a bloody night you all had, and i am so bloody angry about a & e, how dare they leave our duracell bunny in that state, as you said would they leave there mums like that or prince philip? no they would not!!!!, its not on, your mum is such a dignified and glam lady, it is disgusting care. i am praying that today is a much better one for you all, glad your mum has been admitted and now they can help to make her feel better bless her, glad you and your dad had some sleep, hope you feel a bit more human this morning babe.
i am thinking of you all sweetie and please send our duracell bunny the biggest hug, will keep coming back on to see if you are about my honey love ya lots, and we will always be here for you love your friend karen xxxxxxxxxxxxxx
Dear Kate, I do hope today's news of your duracell Bunny is a bit better...you both had such a rotten experience last night, and it really wasn't on that she got left in such a bad state,as you say, if it was their own, it just wouldn't have happened.love and hugs for both you and your Mum....
Hi guys just had a phone call from Kate and the duracell bunny isnt so well im affraid. She is in theatre at the mo having an op on a perforated bowel and the family have been asked to say their goodbyes as there is a chance she may not make it through the op very very sad time for our Kate.
Any messages let me know and i will pass them on as sadly she has been banned from the site typical eh just when you need support Bar stewards.
No worries although im sure Kate can read these messages I think she cant answer but just in case I will still pass messages on. I wish I was with her right now I went through the saying goodbye twice with my mum I was happy it didnt happen first time but gave me false hopes the second if you get what I mean. Its heartbreaking especially when it has been a horrendous journey with the NHS.
