Possible Reoccurrence

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Hello all,

 I had cervical cancer nearly 7 years ago. I had chemo, radiotherapy, brachytherapy, several major operations and I was given the all clear and 18 months I was discharged from the cancer hospital.

Over the last 2 years I have been having bowel obstructions and over that time I have had 3 CT scans. Each time I have had a CT scan I always ask if there was anything “ominous” and I have always been told no, it is scar tissue.

Over the pass week I have had a bit of vaginal bleeding. I rang the gynae nurse on Friday who told me to go to the gynae clinic to be checked out. I saw a doctor who told me the CT scan I had in April was checked by a radiographer and it was fine but when a second radiographer checked he found something and apparently they wrote to me and I apparently rang and cancelled the appointment! I told the doctor this not true but she didn’t believe me. She said she would refer me urgently for a MRI scan and I should have one in about 2 weeks and I will have to wait maybe a week or more for the results. I was tears and very upset and I really don’t know what to do.

The hospital has let me down seriously big time. I am worried if the cancer may have returned and maybe too far gone for anything to be done. I can’t have anymore radiotherapy and I would have to have chemo which made me very ill previously. I guess new treatments and regimes have happened since I previously had chemo. I am holding on the fact that whatever it is, was missed by the first radiographer is small and treatable. My mind is racing all over the place.

Any advice or help will be gratefully received.

Love and good vibes,

  • Hi . I'm so sorry to read your post and to see you're back on the roller-coaster ride of emotions. It does seem like your hospital has let you down. Last year during the height of lockdown I had one or two appointments with minor mix-ups and at one point it did seem one hand didn't have a clue what the other was doing.

    I can see you've already joined other groups and, as you are under gynaecological care, there are several groups you could benefit by joining to get support and questions answered. Once you have your MRI scan find out what cancer is being looked for, I suspect Womb. Alternatively give your CNS a call and ask her.

    Chemotherapy treatments are much more advanced than in latter days and anti-sickness medications are much better.

    t’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

    There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

    Sending you welcoming hugs, B xx 


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  • Hello MrsBJH,

    Thank you for your reply.

     I had a phone call this morning from the people who arrange MRI scans and they have made appointment for this Saturday 18th September at 8.00am! I then rang the gynae nurse and she booked me in for a clinic appointment to receive the results on Wednesday 22nd September at 3.30pm. I haven’t stopped crying and worrying. And I became more worried because they want to see me very quickly.

     I am hoping everything is fine and good but I know I will have a breakdown if I am told otherwise. I am worried because if it is I can only have chemo and I previously mentioned it made me very ill previously. And if it is back hopefully it is small and contained. 

    I have radiation enteritis caused by radiotherapy, colostomy, urostomy and a fistula and now possibly this and I don’t know of there is anything they can do, which frightens me so much. As we mentioned about chemo coming a long way over the years and I have of imminoutherapy (sorry I have spelt it incorrectly), so fingers crossed.

     I asked the doctor on Friday where about the shadow was on the scan (cervix or bowel) but she said she didn’t know.

     I will let you know how I get on.

    Love and good vibes,

    Lisa

    xxxxxxxxxx

  • Hi When I rang my GP and mentioned I'd had a couple of days of pink mucous like spotting on my undies a couple of days apart (I was several years post menopause) she put me on what's known as the "2 week wait pathway" for cancer screening. I naively thought it'd just be 2 weeks until I had any or all relevant tests then see a consultant. Due to Covid it was more like 4 months but lightening quick to my mind!

    It is a scary and worrying time but you're not alone, we've all been there or supported someone that is on the same journey.

    Come back after your consultation and we'll signpost you to the right group to join.

    Sending hugs, B xx


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    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi,

    Thank you for reply.

    The thing is I have previously had chemotherapy, radiotherapy, brachytherapy. I have radiation enteritis and I have a colostomy and an urostomy and I can’t have anymore radiotherapy, so I guess it will be chemotherapy, which damaged my kidneys and I had sepsis and was in a coma. The doctor I saw on Friday didn’t give me hope.

    Lisa

    xxxxxxxxxx

  • Hi ,

     I have just come home from the gynae clinic and the bleeding is because my pelvic floor has dropped due to the treatments. I asked the consultant to marry me! Ha, ha, ha. He advised me to contact the late effects clinic.

     I thought I would let you know and thank you for your kindness,

    Love and good vibes,

    Lisa x

    Lisa

    xxxxxxxxxx