We Talk Brain Tumours

FormerMember
FormerMember
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Hi everyone

I am just trying to navigate myself around the site.  Still struggling, but thought I would try and make a temporary place for the WTBT folk as we are all wandering round like lost souls at the moment- don't know if this will work- but worth a shot while Mac try and resurrect the old thread

Love Ali xxx

  • FormerMember
    FormerMember in reply to FormerMember

    I know its possible,  I had an MRI on the day I was admitted for surgery, this is the scan he used for 'guidance' system  for surgery. (also had a chest x-ray & heard the female operator moan "but she's only 41" hmmm), bad brain but good boobs apparently LOL  But since then, the RT department does not communicate too well with the oncology department, time after time I have had to sit outside while my onc, her registrar and my nurse all look at the scan before I go in to be told what they think, then I get, of course if the Radiographer disagree's we will contact you!!!!!!! Yeah great thanks!

    Anyway, I have a scan booked ........... on this saturday coming at 3pm, not too much time for me work myself up into stupor over at least.  My specialist nurse had a patient who had to cancel, so she told a little fib that I was experiencing headaches and they agreed for me to take the slot instead.  Of course now she will have to try and get my onc appt moved forward or I will be waiting until Feb 23rd for the results.

    I will be taking donations of positivity and good vibes for a clean MRI, also if you don't mind, send some for an easy needle insertion for the contrast please.  This has been a problem for me since chemo, my veins have gotten themselves a sub like in "inner space" and DIVED DIVED DIVED deep into my arm.  They usually send out for the smallest needle possible and that works, all this for someone who used to be a regular blood donor in my life before Buttercup.

    So, all systems go........now the moods will start and I will be cross and snappy with the family, only 3 and a half days for them to suffer!

  • We also had to wait almost two weeks. Ridiculous. In this day and age where you can get everything a the touch of a button...it should be instantly sent to your Oncologist. We had to go to one hospital for the MRI and then to another for results...maybe that is what causes delay in some situations. 

    Whatever Debs.     Willing the demise of Buttercup...or for her to be fossilised. I've said it before....you sound on top of your game. Positive thoughts...when this comes back good I think you should do the sequinned bikini.

    Pam       Good luck with Tony's homecoming. Sometimes they dont feel so scared surrounded by all the pain relief and help at any time of day and night in the Hospice. I used to feel that I was such an amateur when I was trying to change bed sheets with Mark in it or when we both fell on the floor for the umpteenth time after I jammed the hoist...but when all is said and done..."There is no place like home" and if it does not work out then nothing lost. Just make sure you leave some of the drugs for Tony....especially the Hallucinogenic ones...because still cant find Pete in a dress on Facebook( he has probably deleted it now).

     

    Love Cathi xx

  • FormerMember
    FormerMember in reply to catg

    Desperately hoping Pete has a sense of humour and that privacy controls allow this but ... here you go Cathi ...

    http://www.facebook.com/#!/photo.php?fbid=50578348802&set=t.592353802&type=1&theater

  • FormerMember
    FormerMember in reply to FormerMember

    Debs,

    I think being moody and snappy is more than acceptable in this situation and your family should be prepare for it to be even worse while you wait for the results!! It's your perogative :) Lots and lots and lots of positive thoughts coming your way xxx

    PS: Whenever dad had an MRI at Queens it was always on a Saturday, always struck me as strange that they did them at weekends. Is that the norm?

    Naomi.xx

  • FormerMember
    FormerMember in reply to FormerMember

    I think Saturday is a normal working day for the scanning department, but this is my first weekend scan in 3 years,  Kim my nurse said they tend to run more to time on a weekend, I will reserve judgement lol

    Of course now I am panicking that I won't get my hair done by the appointments, I like to look good for the hospital, I like to keep people guessing what I am there for!

    Pam, I hope Tony's homecoming is smooth and uneventful, unless its something good happening.

    Love & Strength to all who want or need it.

  • FormerMember
    FormerMember in reply to FormerMember

    Just wanted to say a quick hello again! I'm back online after 5 weeks of no pc. 

    A quick update-My Dad had his scan moved forward (last week) and gets the results this Thurs. He has shown decline on left side use and we fear these results. He's suffering from the last lot of chemo-it's left him incredibly tired which has meant he can't do his smaller daily walks or his long weekend one. On the positive side, we all shared the most lovely Christmas. I expected it to be incredibly hard and emotional, but we had a lovely few days.

    Lots of love to everyone x

    Oh and ty Naomi for the pic (and Pete of course), made me smile lol! 

  • FormerMember
    FormerMember in reply to FormerMember

    had forgotten seeing pete inthe dress thanks naomi, so funny

    Debs - you have every positive thought possible coming your way, I dont envy your family but they will cope!

    tasha - glad to hear about Christmas and welcome back, chemo is cumulative so your dad would be expected to feel more tired towards the end of it and it can take him some time to recover, I hope thats the cause, but will send positive vibes to you as well for Thursday

    Pam - hope tony is home with you now xxx

    Jxx

     

  • FormerMember
    FormerMember in reply to FormerMember

    Debs,  Allow me to be on "Happy Stabbing" thoughts duty.  If I can distract you with any lurid and embarressing thoughts, so much the better...

  • Lol   Sorry Pete....I think when you jump... the naked costume would be better than that dress.

     

    cxx

  • FormerMember
    FormerMember in reply to catg

    Thank you sssooo much everyone for your words.

     Can you believe I have cried over them all (but for a good reason).

    Pam Debs, Pete in a dress , bring on the party...........

    Seriously have busy week ahead now but when I raise my glass of champers on Saturday it will not just be for our beautiful daughter. It will be to all of you as well....

    Thankyou

    Pam hope tony settles at home,. Debs you can't imagine how many good vibes I am sending you.

    Whoops blubbing again

    Love and peace

    Denise