We Talk Brain Tumours

Medication all gone but you can borrow my cheerleading outfit if you like?

;o)

Oh boy.  This is what happens when I'm surrounded by women...!!

Pete - don't blame us women! I'm your friend on Facebook remember? I've already seen you in a dress. ;o)

Hmmmm Pete, so now you have the option of naked running & bungee jumping, or cheerleading in full costume......see the choices you are offered here........and boy do they make me laugh, sorry its at your expense but nah I am not really, better you than me!

Going to phone my hospital AGAIN and chase that MRI (not that I want it.......but its gotta be done).

Love & Strength to all who want or need it xxx

Victoria, I am glad you have found the strength to come back and get some support.  After Paul was diagnosed i lurked and read all the posts for 12 months before taking the step to join, because of the work that i do i knew exactly what was happening and the path we were on, Paul also was aware that I knew but we still remained positive and we had a lot of laughs and tears after his diagnosis, we became even closer than i ever thought possible.  The friends i have met on here became and remain a lifeline to me, I could say exactly how I felt and get the support I needed , things i couldnt and wouldn't say to family and friends who visited, and virtual hugs didn't make me cry in the way real ones did and I didn't have the time or energy to waste on crying, virtual wine didnt make me have a hangover either.......  Anyway read, post do whatever you need but remember you are not alone, we are here to help you xx

Pam, I am so jealous of your wonderful creative mind, course if it is the drugs - you need to share!  Pete in the cheerleading costume with pom poms,  so funny.  How are the plans going to get Tony home?  Will he be home tomorrow?

 Debs - when you get through and get the scan booked ask if you can get the results same day, it can be done.  Sending you lots of strength, I know how I felt about the scans, but anything Damien can do Buttercup can also do

 Love to all Joanna xx

Debs - What do you mean better Pete than you? I had you riding on top of one of the elephants in a sequinned bikini! Good luck getting your MRI. Please let us know how you get on. And yes, same day results, sounds like a good idea if you can get it.

Tony coming home today. Not sure if I should go to the hospice and stay with him until transport gets sorted or just wait here for his return (in my cheerleading outfit). Everything here is sorted and ready for his arrival. Am excited to be getting him home but also a little nervous. As many of you know, a stressed out Tony is not a pretty sight and he's already been on the phone three times asking me about how it's all going to work at home. I think he finds the hospital set up very reassuring. We can try it anyway and if it doesn't work we'll try something else. No biggie.

Will let you all know how it goes. Love to everyone and wishing you all a perfect day filled with all the things that make you smile. But mainly thinking of Pete in a cheerleading outfit.

Pam

x

Joanna, I have to wait at least two weeks to see my onc for my results and half the time they are not through then, she just reads the scan herself!!!!!!! Same day, don't make me laugh!!!!!!!!!

Pam, me in any form of bikini really isn't something ANYONE would want to see and no way to celebrate Damiens extended sleepover lol

Debs - the MRI results really can be gained the same day! Honest!

Dad was due for one when his illness was very advanced and he was unable to communicate. He had his usual oncologist appt for two weeks later to discuss the results. However, because he couldn't confirm his name, DOB etc they refused to let him have the MRI (for a ****ing brain tumour for god's sake, doesn't take a genius to work out he may not be able to communicate - sorry, it still winds me up!!) until his oncologist had sent a signed consent form on his behalf. Anyway, they arranged for him to have his replacement MRI the same day as his oncologist appt. He had his MRI at Colchester General Hospital at 12pm and by 2.30pm the same day at Essex County Hospital his oncologist was giving him the results. The only thing that they couldn't get was the image up on screen.

I hope you get the MRI soon, I cannot begin to imagine how it feels waiting for it. You amaze me every day with your sense of humour and the way you support everybody else. I have everything crossed for you the results will be favourable.

Good luck with chasing them up!

Naomi.x

Pam,

I hope Tony's homecoming today is peaceful and calming. It won't be an easy road (although as Pete says, it doesn't necessarily have to be stressful) but how lovely for you to have him home.

Thinking of you and your children today.

Naomi.xx

2 weeks??????? - debs that is awful, we were told by the onc nurses that if we didnt get the results on the day to phone them and they would tell us so we never waited long.  I can't even begin to imagine the wait.

jxx