We Talk Brain Tumours

So good to hear from you again Helen! Sorry that you are feeling low. We are all up and down all the time and every month seems to have another milestone that we have to cope with alone. I hope that the past year has been kind to you. 

Lots of love Cathi x

Hi, 2011 was total rubbish. My wonderful husband died from GBM4 in March, my Dad died suddenly in June, managed to get back to work in October then fell down stairs and broke my ankle in November. My 18 year old daughter did mange to pass her A levels during all this and has now gone to uni. So hard to comprehend what has happened and whats it all about.. Sorry to sound down, try to pull myself together, but feel lost and in limbo still.

Helen

Wow, your daughter has done you proud there, then. How she's managed to focus on anything is amazing in that year - nobody could comprehend coping with that sequence of events, what a terrible time you've had Helen. Thinking of you as you approach your husband's anniversary. You're a lovely person, I always remember you were one of the first people who messaged me when I first joined this community. I hope you can find some peace and happiness again, soon. You have your life to live, and I hope 2012 is kinder to you. Love Debbie xx

Hi everyone,

I havent managed to read through all of your posts but i hope everyone is as well as can be. 

I just wanted to thank you all for your advise and information. Cycle one of chemo is over and it wasn't half as bad as i was expecting, he suffered a few bigger seizures but nothing to be concerned over. He still spends most of his time sleeping when in the house but nothing new there. (The consultant is hoping once we finish the year course that this will improve and he will have more energy). The only stressful thing that came about from it was the GP sending a letter to his work saying he was unfit to work and he has been told if he turns up to work they will send head office down and send him home!! So we now need to arrange an appointment so they can write a fit to work form.

Also my oven and microwave decided to blow up this week so with a very fussy eater of a husband i have no idea what to cook to keep us all happy.

Zoe x

Zoe, glad to hear the chemo went better than expected.  As for cooking I have no ideas at all, not my area of expertise!

Helen, I really cant believe its been almost a year, my heart goes out to you, the roller coaster doesn't seem to end does it - we have our good days and our less good days.  Whatever you decide to do is going to be hard but as always you will manage

love to all

Joanna xxx

Zoe, there's many pre-prepared meals that can be heated up in a conventional oven (assuming you have one).

They've been a lifesaver for me both when Ali was around and after she left me.

hello everyone..i haven't written much but i read these every day...

so just to say 'thanks'...

you're a really good group and very supportive to each other....on all issues..

I have breast cancer which is now travelling downwards.....It was a shock for me last month when my brain tumor was found...i think it was because the words 'brain tumor' always sounded really scary and final....

I've had radio therapy last week...hopefully its going now.....so i feel better about it.....

I've had trouble eating..I have a lung drain fitted and it gives a bad taste....i have been virtually living off pot noodle and cup soup...salty stuff like that....

oh..and brussel sprouts...they taste even better...if that can be possible......!!!

my district nurse said its ok because they are full of carbohydrate...so pasta and noodles is on the menu for a while...

thanks again, I look forward to reading your posts and advice....

jackie xx

Mmmm Brussels,if you think your diet is bad you should see what I had for breakfast......apple pie and cream.  The reasoning behind this is last night I didn't want to eat,we had a lovely piece of salmon and sauce which I usually love but just couldn't face it but the others had thoughtfully left me the apple pie so I thought get in there quick while i still fancy it.  Yummy.   I dont think it matters what you eat as long as you can get something in you.    Just had my 5th chemo and have felt progresivly worse with each one but it has to be worth it.    Wednesday I am determined to go out and visit our favorite eating place for lunch" Flaming Dragon" this lodger is not going to beat me and spoil my favorite pastime    good food.   Glad to see you posting XXXX    Colette

Well I don't eat breakfast and apparently that is just as bad for you!  I think you are right Colette, eat what you can when you can, even through chemo I didn't have a problem with it going in ..... just getting it out the other end if you know what I mean.  I think the fact I was on low dose steroids for the 5 days helped keep my appetite up.

Waiting in for a parcel collection today so no walk to Tesco's mind you, it looks bloomin cold out there, might venture up the garden (all 30ft of it) to feed the birds, my favourite is a robin who was looking a little pee'd off yesterday as he pecked around my bird table for the scraps as I hadn't been out there to feed them.

Love & strength to all who want or need it xxx

Hi everyone

Sorry but I just have to shout it YIPEE YIPEE YIPEE. There I've done it now. Just got back from the hospital. Damien is STILL ASLEEP. Infact  slightly smaller then  the last MRI in may last year.

Turns out Chris didn't have a water infection  His Dr isn't sure why he had the seizures so is starting him on anti seizure meds

Well the news couldn't come at a better time as our eldest daughter is 21 this Saturday.

Now I can concentrate on her. Sorry just one more YIPEE.

Love and peace to all.

Denisexxxx