We Talk Brain Tumours

Saturday night Pete and Im on my netbook,lol.Got my music on aswell though.Hubby is out.Youre doing a great job.Have you had a beer yet? HUGS xx

I have been following Harry Mosely since he won Britains Kindest Kid a couple of years ago.  He had a brain tumour and during radiotherapy he made friends with older people in the same boat, unfortunately he lost a good friend and decided that something had to be done.  He started making beaded bracelets to raise funds for tumour research.  This has got bigger and bigger and earlier this year I got myself a bracelet.  You can coose your colours, so I chose, grey, black & white to keep it in line with brain tumour awareness.

www.helpharryhelpothers.com

Unfortunately, Harry started to deteriorate a few months ago and last night at 11.10pm he passed away in his mothers arms, aged 11 years.

His story probably won't make the news, apart from regional where they had followed his bracelet making.  But I felt the need to let other people affected by this awful disease know just how much this little lad did for us, a true inspiration and a great loss to humankind.  Peace be the journey Harry, wearing my bracelet with pride. As shown below (picture taken the day I got it, hence the time being wrong)

Love & Strength to all who want or need it xx

back TTF (to the front )

Hi Joanna,

Thank you so much for thinking of us.  I only wish you were part of our local services!  I do hope you are at ease with the world? And it's fantastic to see that you are still be a rock for others.  I'm sorry I'm not playing my part at the moment, but everything is so much of an effort now, you'll know what I mean?

I send my love and best wishes to all others here who are struggling with this terrible illness. Lots of love. Martyn XXXX

I dont understand why we arent on top anymore - it still takes me an age to find this forum.

Martyn, Pete its good to hear from you.  Martyn, I don't think I could cope working for social services but wish I lived near enough to help, you seem to get such a poor deal where you are.

Debs - thanks for the update on Harry and I will purchase bracelets to support his effort, I will remember his family in my prayers as well. Life is so very unfair

Love to all

Joanna xxx

This is my bookmark and I come onto the discussion page where we are top or second.

community.macmillan.org.uk/cancer_experiences/general_cancer_discussions/f198/p/460106

/reply.aspx

Both lines. XXXX

My thoughts will be with Harry and his family tonight. So very unfair.

Pete - good to hear the update.

Martyn - lovely to hear from you. No need to explain - we all understand.

Sharron - I will be thinking of you tomorrow as you say goodbye to your mum. Hope the day is everything you hope it will be.

Love to all,

Naomi.xx

Also, I am thinking about Ange as she has gone a bit quiet. Has anyone heard from her in the last couple of days?

Hope things are steady for G, Ange and their daughter.

Debs,Zanadu, Elaine BK thank you for your lovely comments.  If I forgot anyone I am so sorry, living in a different world right now.

Naomi if I don't get chance this week then so much good luck for the surgery. Glad the little one has not been ill yet. Hope you are coping day to day. Does it still all seem like abad dream?  Remembering from the beginning now seems like it happened to someone else.

I will buy the bracelets and encourage others too, such a sad story, makes me feel a little worse for how I feell right now.

Pete - lovely the time you have had with Ali sat with you

Love to all & everyone xxxx

My eldest daughter was 14 today, family round for tea as usual, been so strange and had to keep up everything for everyone.  My daughter last night said to me Mummy I hope you aren't going to be grumpy tomorrow on my birthday - how bad is that, I can't say to her how sad everyone feels at the moment, she is still young and it is going over her head quite a bit and it should, I can't tell her how sad everything is yet at the same time, I am obviously not much fun. Don't want to go into everything with her and have her thinking more than she is or more than she should be.  Don't think the young should be worried more than they naturally feel.  Gosh is that right?

Love xxxx