We Talk Brain Tumours

Hello to everyone - just wanted to say as a relative newbie that I hope this thread stays alive as it is such a great support and I don't have facebook! (computer novice). Please don't abandon ship!!

Love to all,

Mummaggie

Hi MumMaggie,

We will not abandon you I promise, several of us check this thread everyday and I dislike facebook with a vengeance. Take care now.  Martyn XXXX

Hi everyone,

Martyn I can't really get on with facebook either althouh I do like playing scrabble on there!

Two weeks today since Paul died and I am feeling pretty desolate really. Even though he was so terribly ill in those last two weeks at least he was still with us. His funeral last Friday was amazing over 300 people packed into the church, made us very proud. Such a special man xx

Hope you are all doing as well as you can. I too hope that newly diagnosed and people looking for support can find it on here but you are right its not easy to navigate and often seems unpredictable which is frustrating.

Love

Jeanx

Hi Jean,

300 people! that just goes to show how much he was thought of.  I can fully understand how proud of him that made you.

This world is a much poorer place without your Paul and Nicky's Harry.

Lots of love and best wishes to you.   Martyn XXXX

Jean how wonderful that 300 people came to bid farewell to Paul, he must have been a very special man.  I'm sorry to hear that you are feeling desolate but hopefully over time things will slowly get better for you.

My news, my brother is now at home again, my sister is now staying at my brother's house to help his  wife plus they have the Blue Cross nurses going in twice a day.

Tony is no longer mobile and totally incontinent and unable to lift himself up even with a hoist.  Mentally he is not with it 99% of the time and seem unable to talk apart from saying yes or no. He is also finding it difficult to recognise even close friends and sleeps most of the day.

My sister in law who used to be a nurse now feels that his body is going into shut down mode.

Apart from a problem that he is having with one of his legs he is in no pain apart from when they have to move him and I can only be thankful for that.

I just want to send good vibs to everyone and salute everyone who is a carer on their bravery and kindness, although not a carer myself due to distance, I think you are all doing a wonderful job.

Hi T delight,

It's very good to hear that Tony is receiving such good care and most importantly is not in pain. It is such as cruel disease with all it's nasty side affects isn' t it?

I send our very best wishes to you and your family.

Martyn XXXX

Hi Martyn thanks for your kind words and thoughts it was kind of you.

I hope Doreen is keeping alright.

Did you go to the races, if you did I hope you had a lovely time.

Take care xxxxxx

Hi love,

Doreen is quite stable at the moment thank you, we are seeing the neurosurgeon and a neurologist the week after next so we'll hopefully know more then.

Thanks to MandyR we now have a carer/sitter from Crossroads/Macmillan who comes in for 4 hours a week and enables me to go racing, shopping, gym  occasionally, so things quite comfortable for now. We've been here a few times before so not getting complacent.

Best wishes,

Martyn XXXX

Hi To All Who Remember Me

Haven't posted for a while as I am not coping at all well with losing Mum. It has been so much harder than I thought.

Martyn -  I am glad you have acceped support and are able to getg out for a few hours. I am so glad you are still suporting everyone as you were and still are a great support for me. Your posts still make me smile.

Crazy Horse - I hope all is well with you over the water and that you are still remaining as strong as ever.

MandyR - don't know what you did but you must have a really magic wand for Martyn to accept help... Your postings to those needing guidance and support through this bloody awful disease is amazing.

Fee - I have read your postings and it brought back so many memories for me. I am sorry to hear about your Mum and can only say be strong though its hard. Sending you Love and hugs to you and your family.

Allison xx

Hi Allison,

I remember you! I'm sorry to hear that things aren't good with you. I can't do much except let you know that I'm thinking of you. Keep strong if you can.

Sally

XX