We Talk Brain Tumours

Good morning all,

Debs,

Have a good visit to the Wizard and watch out for hazards on the Yellow Brick Road!

Mandy,

Knowledge  Talks  And  Wisdom  Listens.

Best wishes to all,

Martyn XXXX

I must be knowledge then!!

G'day all,

After the scan the other week that revealed another nodule in the meninges, Paul has now been referred back to the neuro unit at QMC Nottingham. Yesterday the Oncologist's secretary called to tell him that he would be getting a letter with an apointment but now he has just called to say that QMC have phoned and that he has to be there at 10 am on Tuesday 29th to see Mr Dow, the neuro surgeon and that he will be having surgery next day. How I wish these people would call me rather than Paul. He gets very mixed up and his memory is so poor. I have no idea what this planned surgery is. It might just be a biopsy but Paul seems to think that they are actually going to operate on the new lesion. I can only assume that the second nodule is likely to be the same sort of tumour and that they are going to have a go at debulking. It's going to be a nerve wracking few days.

Sue(toy) and Mandy, I can remember when my daughter set off to start Uni at Durham and that I cried buckets when I got home from taking her. The 3 years seemed to pass so quickly though and she had such a wonderful time. The empty nest syndrome does cause a few pangs but your girls will be back before you know it.

Love to all,

Susan

xxx

p.s. I decided to contact the QMC myself and it's just as well I did because Paul had indeed got mixed up over the dates. He does have to see the neuro surgeon on Tuesday morning but the surgery is scheduled for the following Monday so he will be admitted on the Sunday. I asked whether it is just a biopsy and the secretary said no, they are planning to "resect" the tumour which I assume means removal. The bizarre thing is that she said something about the new nodule having been there for some time and that Mr Dow had always known about it. We were never told about anything other than the original tumour so I shall have to ask some searching questions on Tuesday, I think.

Susan, like you say good job you rang - poor Paul would have been even more confused on the 29th with bags packed full of expectation. Hopefully if its in the meninges it will be near the surface and easy to access and which is why they have watched and waited - I know when people have a meningioma, which is a tumour of the meninges, often the ns watch and wait as they are usually slow growing and if it's on the surface can be left a while - obviously just presuming and hoping to put your mind at ease even the slightest bit - though I appreciate it probably won't!  Did the secretary how long the op would be?   As far as uni - I can't help but feel the void in my life is getting bigger - that the distractions are getting less - just a bit sad that Abbi hasn't put any time aside for her dad - it's all about her friends - normal I know, but our lives aren't normal!  Like you say, I'm sure the uni years will pass quickly and then I'll be moaning about them being home and making a mess again!!

Will be thinking of you on Tuesday xxx

Good morning all,

The thread was slipping down the page.

Good morning all and thank you Martyn for bumping the thread. I haven't managed to work out yet how to bookmark the WTBT thread so every time I sign into the site now, I have to go on a major trawling exercise trying to find it, grrr!

It's a bit grey and miserable here today. We don't have anything planned for the weekend or rather I don't; Paul will no doubt be glued to the TV watching cars tearing round a track in Singapore, yawn! I am going to do some knitting. One of our secretaries at work gave birth to a little girl on Wednesday, her first child and at just over 4 lbs, a tiny little dot.  I must finish off the little cardigan I started a couple of months ago and which then got put to one side when all the crises started with my Mum and Dad. It's quite nice to be able to think about a new little life after everything else that has happened lately.

Hope everyone has as good a weekend as possible.

xxxxx

Good Saturday Morning,

Picked up my 4th cycle of Temodal yesterday and start Monday - better enjoy this weekend then!!!!

Hi Susan,

Do you sign out after each visit?

I never sign out so I always return signed in.

I have also bookmarked / favourited the General Cancer Discussion page of the Forum, so that is the page I return to.

i also use Mozilla Firefox as one of my browers and that returns to the tabs I was using when I closed down the previous session.

Regards to Paul,

MartynXXXX

Hi Susan

Just to say that overall, our experience of the neuro ward (D12 I think it is) at the QMC was very good.  Not sure whether Paul has been in there before, but I felt that Mum was in safe hands when she was "resident".  I hope everything goes as smoothly as possible.

Love Ali x