My dad has had this for 7 and a half years, with no symptoms. He had lots of nice holidays and we cried alot thinking he was going to die soon. He gad 2 rounds of chemo , which never made him ill . He still went to the pub as normal , so really his cancer was like made up, i never thought what ahead happened was going to ever happen. he had trials at xmas and he got the placibo , which was one in 3 people will get the real drug, whereas the other 2 will get a saline drip. but he has took a turn for the worse. He was so sick and then the weight dropped off and he started to look like a cancer patient. He takes 60 mg of slow release tablets in the morning and night. No one told me of organising a dossit box to help him take his tablets. He got taken into hospital for constipation from all of the tablets he started taking. He discharged himself in his pants because he has become confused. I dont know if his cancer has gone to his brain or its all the morphine talking. Hes gets anxiety , very rude to people, forgets what he did the day before. He depends on me all the time to take him out and keep him busy , i have a family and im tired and its hard to watch him in so much pain. He has a partner which is also finding it hard but she has had enough so leaves a lot of the caring to me. I know my dad is a sociable person so i find it hard to see him in pain. He is still driving even though a few weeks ago he was loading my oven up with dishes thinking it was my dishwasher. He has changed in personality . He has liquid morphine every hour to help ease the pain. Hes still mobile but like a skeleton. I dont know how someone can push themselves this much. He wont go to sleep cause hes scared of dying so he can fall asleep standing up when im talking to him cause hes so tired . I dont know if this is normal. Is he at his end of life , thus suffering has gone on for 10 months, but he has had 7 years of quality life , his cancer grew very slow. In one way he has been lucky . But now its horrendous to watch .
Hi and a warm welcome to the online community
I'm sorry to hear how poorly your dad is at the moment and I can understand how distressing this must be.
I haven't had experience with this type of cancer but I noticed that your post hadn't had any replies. You might find that you'll get a response if you post this in the mesothelioma group, which I can see you've joined. Clicking on the link I've created will take you directly there.
You may also like to join the family and friends group as it's a good place to share worries and get support. To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post your question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.
When you have a minute it would be really useful if could pop something about your dad's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Sending a supportive ((hug))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
