My dad has recently been diagnosed with Transitional Cell Carcinoma, he has cancer in his kidney. Due to his other medical conditions (COPD being one) and his general health and mobility he is unable to have any treatment or surgery so has been told he is terminal. He is on palliative care and is currently still in hospital. He is under Urologist consultants and kidney surgeon and had not been seen by a oncologist although I believe one has been present at MDT meetings. I am confused a lot of the time and I don't feel as a family we are supported. I am a bit confused about what Palliative care actually involves once dad is home and who will deliver it. He will have carers to help him with daily tasks but what about medically?
Just so hard to see and talk to doctors as they are rarely available and the team caring for dad in the hospital seems to constantly change. I am just really overwhelmed.
In the past I've found raining the hospital and asking to speak to the PALS service to be a great help.Its not the same thing but when my husband was ill re his gall bladder I couldn't get answers from the drs so I spoke to the Pals people and they had all the information and got the drs to ring me.
Thank you for your reply. I did contact PALS who told me they had to get dad's permission. So I gave them all his details and ward number etc and they have not been in contact with him or responded to me since. I was told they were very good but I am not getting far with that. I will keep trying.
If it's not doable you're dad giving verbal permission to the PALS service,could he write a letter for them..or you ring them when you're with him and get him to say it's ok to chat to my daughter
It has been difficult. I have tried to ring and went to their office inside the hospital. They have finally replied to my email asking for dad's name (which i already provided). He will speak to them himself about some issues. He is due home in next few days so may all be a little late.
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