My husband came home from hospital on Tuesday. It is great to have him home. I am struggling and needing to vent about all the things that are happening in our lives now. Carers pop in at random times as does the community nurse, catheter nurse etc. nothing seems to be going smoothly, the hospital bed isn’t suitable for my husband. The hospital OT came round and decided to order a different type…we are still waiting to hear, the overbed table arrived in bits and is broken so the OT has ordered a replacement.
This morning I went to say good morning to my husband and the catheter had leaked all over the carpet. I phoned the community nurses at 8.30am and am still waiting for a visit , it is midday now.
the dog needs walking and soon more carers will arrive and my husband will need his lunch.
Family and friends are either away on holiday or busy so I am on my own. Sleeping is difficult because he keeps calling me for reassurance or to be changed. He is bladder and bowel incontinent.
he has spinal cord disease so can’t move from the waist down.
I adore him and my dog but I don’t know how long I will be able to keep up with everything he needs and run the home and look after our beloved Poppy dog. I know it is early days but looking for some hope that things will calm down and I will feel better able to cope. Thanks for being there.
