Hi there
My husband is 43 and just had his second last R-Chop session and we both feeling so much anxiety as we head towards the end of treatment.
I'm waking up with panic attacks. I'm not negative but I'm feeling scared. My beautiful husband is doing so well but I can see his worry.
My daughter who is 13 just says Dad will be fine and appears to be ok emotionally.
We have no family and a handful of friends here. I work 60 hour weeks and my husband has been working from home and goes to work when he can.
I just feel alone. It feels so selfish to write here because I'm healthy.
My husband is my best friend and seeing how he has been suffering has hurt so much.
Hi ZeeT I don’t normally post in this group but noticed you martini R-CHOP……. From this I assume that your husband has one of the 60 types of Lymphoma.
I am Mike and I help out around our Lymphoma groups. I have been in my Lymphoma journey for over 25 years so know the journey well.
We do have dedicated Lymphoma group where you can connect with others be it family or patients
General Non Hodgkin's Lymphoma
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
Thank you so much for the reply. Yes it's Stage 4 DLBC Lymphoma that started with a 15cm mass in colon spread to liver and other spots. We on a clinical trial as well. I will join the group. Appreciate your response. Your journey gives me hope
Oh when it comes to Lymphoma, especially high grades like DLBCL the initial aim is to cure…..
As I said I was stage 4 in late 2013 with two types of hard to treat NHL…… as my consultant said… “Mike in Lymphoma staging is an indication as to how we treat and unlike most other cancers is not a poor prognosis”
I'm supporting and caring for my daughter with a very different type of cancer but I know exactly where you're coming from. She's had 18 months of treatment ... 8 chemos, 3 surgeries, 15 sessions of radio then a final 14 chemos. Just e chemos left. I was beyond devastated at the start, but somehow you learn to cope and it becomes a way of life. But now she's coming to the endcof treatment. I know this is a blessing, her body can't take much more, but I have the feeling of the safety net being taken away. I'm terrified. Daughter has actually booked a couple of sessions with the counsellor she saw at the start to help her cope.
Very best wishes to you and your family. xxx
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