Hello

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Hi all, 

I hope you are having as best a day as you can.

I am a dad to a beautiful, courageous 18 year old daughter.

4 years ago she was diagnosed with a grade 2 astrocytoma and to date has had 3 surgical resections.

We were told that follow up scans were showing no re growth but now in the most recent on their most certainly is!

She has now transitioned to adult services and we had a meeting with her new Neurosurgeon.

He took a lot of time to explain her situation and to point out that for the best outcome he needs her awake during surgery.

Despite his assurances that there will be no pain she is understandably freaked out at the thought.

He has also said that in his experience these tumours always come back which has hit us all a bit hard and we are in shock.

She has been driving a year and loves it! She is about half way through her advanced driving.Having to stop driving is going to be a real wrench.

She also has just got her first real job and their is a real worry that she will loose this.

That's it in a nutshell but I do have 2 questions.

Does she have to surrender her licence immediately? and when would be the best time to tell her work and how?

  • My son was woken up during the surgery and they tested all different parts of the brain...eg speech...counting .. and getting him to answer all sorts of questions. No pain and recovery very quick. 

    My son had to surrender his licence from the onset as he had seizures. He was a bus driver and loved it I'm sorry that doesn't answer your question as they are all different. 

    The company employed him in the office so he was able to carry on working.

    My heart goes out to you all. 

  • Hi Grey Beard,

    I have no experience of your daughter's cancer but am.so very sorry that this is happening to your family.

    My daughter was diagnosed with a rare and aggressive cancer nearly 18 months ago. Eight brutal chemo cycles were followed by three surgeries and 15 sessions of radiotherapy. She's now just over half way through a further 14 chemos. 

    It's so hard. As parents, we just want to protect them and 'make everything right' - but that's not always possible. You can only be there and celebrate and do your best to enjoy the good days.

    Sending love, strength and a big hug.