Hi, I’m hoping someone can offer some suggestions on how to look after yourself while supporting a loved one through diagnosis and treatment.
I feel so selfish for writing this as it’s mum that’s going through it, but as her main interpreter and carer, I need to find some kind of balance so I’m in the best place to support her.
Since April, mum has been diagnosed with breast cancer and had a successful lumpectomy and a lymph node biopsy confirmed it hadn’t spread. Then they found lung cancer and she is now having chemotherapy and radiotherapy to treat NSCLC.
Mum is deaf so I go to most of her appointments to make sure she understands, her sisters have offered to take her for some of her treatments so I won’t be doing this alone, but up to now, it’s been 95% me. And when I can’t go, I feel so guilty as sometimes her sisters can’t get her to understand what’s happening so I feel it’s my fault as I should have been there.
As it’s stands, I’m juggling mum and her treatment, 3 kids, a partner, full time work and 2 auto immune conditions and I’m not dealing with any one of these things successfully at the minute. Both of my conditions flare up as a result of stress and if that happens, I will be bedridden and won’t be able to go to any appointments so will be no help whatsoever.
I am not an emotional person and I have kept it together up until these last few days. I don’t get upset in front of mum because if I break down, she will, so I have to stay strong but since Friday, I can’t sleep, I’m irritable, I keep bursting into tears and I even shouted at mum today, that’s what made me realise I need to do something.
I don’t know what it is I need, whether it be an outlet, therapy, support? How do you cope? What helps you keep balanced and be in the best position mentally to support your loved ones?
I hear you… My husband has cancer in the throat. have an elderly mum to look after, and have MS my self, mobility is hard going. Sleep is what I am desperate for..sure you must be the same. Hope you can take a few time out hours…. Some breathing time …. Be it a super long bath…. Or a coffee and a silly chat with a friend. thinking of you xx
Thank you for your reply, I’m new to this and the notification went to spam.
I’ve decided to take some time off work sick while I come to terms with things. The rest of my family went through the grief and upset when we first found out but it seems to have been delayed with me and only now does it seem real. In the early days I was focussed on mum and how everyone else was feeling and making sure they understood what was happening, the whole time not facing my own feelings. Well it couldn’t last forever and now my feelings have come back tenfold.
Im so sorry you’re going through this too, but the only silver lining is at least we know we are not alone.
thank you again for taking the time to reply xx
I know it probably doesn't help but you are not alone. My partner has non curable prostrate cancer now in his lymph nodes, work full time as a teacher and we have two kids under ten it's bloody hard work isn't it. This is my first reply/post on here so I'm hoping to use this site to support myself as we can't help others if we're not ok can we, like you I am worn out and just keep bursting into tears, hoping when work subsides at Xmas I can find my sanity again.I think you have to try to look after yourself and let others help if they offer (friends/family). Take care x
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