My husband was diagnosed with cancer of the ampulla just 10 days ago. We are currently waiting for a date for a Whipple operation. He's been warned that it's a huge and high risk operation. He's losing weight and getting very tired and is starting to look very ill. It's all very frightening and I'm aware that he is just at the start of his cancer journey. He's being very positive and has a lot of support from family and friends. I'm doing the best I can to stay strong and positive for him and our adult children too. But I'm struggling with seeing the changes in him and coming to terms with his diagnosis. I feel selfish for wanting someone to offer me some emotional support, but I think I need it in order to be able to give him all the care and support he will need. I have a large family, 4 sisters and a brother and a huge family of in-laws. My family have stayed completely silent, no communication in any form since his diagnosis with him nor me. Considering he's been a kind and supportive brother in law for 37 years this is heartbreaking. I feel totally abandoned by them and my anger and disappointment in this is taking up more of my energy that I really aught to allow. His family are calling him every day to see how he is. Which is exactly how it should be. But why do I feel jealous of that. He's the one with cancer! Why do I want someone to ask me how I'm coping? I feel so scared and alone right now, angry and abandoned. The person who I would usually ask for reassurance and have a moan to is the one who I must keep a brave face on for. He needs me right now. Sorry this is such a rant and feeling a bit sorry for myself but I just needed someone to get this off my chest, and so far there's no-one I can turn to
Hi Ayni
Many of us reading your story will I am sure feel "me too". Have on times seen carers have to step in and limit the family contract with the person with cancer because frankly they can become exhausted but then some family can feel left out - it can be something of a nightmare.
If only that "keeping a brave face" was as easy to do as it is to write. Perhaps a helpful guide is Talking about your cancer diagnosis - most especially with the ones closest to you.
<<hugs>>
Steve
Ayni just stay strong n always keep a smile!! I'm having tests at the moment for cancer and I'm scared but I can't show it,I've lost 3 stone as don't eat,I've only told my partner n I think if I do have cancer how the hell do I tell my kids as they only 18 and 7,I'm not here for sympathy but if I do have it the last thing I want to see is sad faces! So that's why I said you should always wear a smile! Take care and just wear a smile
Hi, I know how your feeling.
I feel the same my hubby has been diagnosed as terminal and all of a sudden everyone’s ringing and turning up at our door! I have spoke to hubby and told him how I feel about it and he has taken this on board. I have now set up a WhatsApp group to inform people of progress which has helped. I wasn’t the only one getting overwhelmed he was too. I did have to be a bit firm and let people know that we know they want to help ( they haven’t been here for the past 25 years so why start now! ) but we needed time to get our heads around things and try to lead a normalish life.
I am lucky I have a very close friend who when ever I see her asks me how I am before anything else. I do hope you get the support you need but don’t ever feel guilty for feeling angry and upset. Talk to your hubby you need each other more then ever he may surprise you
sending you hugs
Ayni Hi
Being both suffer and carer I feel your pain. Your not selfish. You need support too. I wonder how things are for you x
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