Hi all , my husband has recently been diagnosed with oesophageal cancer and is still having tests done to grade it and decide his treatment .we have 3 children 20, 18 and 4 the oldest 2 understand and we havd been supporting each other ,we have told some family members but to be honest ( and I feel really bad) I'm getting fed up with family memders telling me "it's going to be fine" , "he will be ok", " when I though I had it ,it turned out not to be so he might not even have cancer" , "don't stress about it till he has had all the tests done"? etc...iv got to the point I don't want to talk to them about it anymore , thoughts go through my head like " they don't know that for sure" and " I'm not asking for reassurance just someone to listen to me" " He has been diagnosed with it" I keep telling myself they mean well but I don't know how or weather I should tell them how I'm feeling or to just grin and bare it . Im finding small talk hard aswell .My eldest 2 understand what I'm saying and are great support but they are both off to uni September so im feeling a bit sorry for myself at the mo then hide it when hubby comes back from work . He is working fof as long as he possibly can bless him . We have got said alot to our 4 year old yet but she does know he is ill because he is sick alot x
am I a bad person fof thinking this about what they are saying to me or is this kind of normal .
Thank you so much... I see sunflower mention about setting up maybe a whats app group... Its strange as life as u kno can feel its all been tipped upside down and inside out... For me I can be fine and make plans for later same day and its like out of nowhere the weight of the world is sat on my shoulders and mental exhaustion smothers me and I have to cancel.. I've never been someone who second guesses but even replying to you or couple of others I worry that I'm shouldn't as maybe it's a relatives group or different type of cancer... But I have been the relative and now I'm the patient so to speak.. But I find it helps as I have children so can see how it may affect them or my mum, or help by seeing someone else tells their children and obviously how others like u feel can't speak to friends as they jus don't get it.. I think only someone who gone thru similar experiences can truly identify.. I jus identified with you especially regarding friends but the difficulties dealing with kids... Not knowing how or how much to tell them as I kno for me I don't want them to feel any horrible emotions or sense of loss... I jus want to shield them and let them enjoy as much time as possible and maintain sense of immortality that the young have and joy of life... I'm so glad for being able to speak on here.. Even though I'm techn phone and don't really kno wot I'm doing.. Lol.. Night and hope you can enjoy those happy moments and the hard dark ones don't succeed and stop u from seeing x
Hey
thanks and you sounds awesome
I really think we should be able to have access to some sort of a company when we need it far more quicker and efficiently.
it’s such a drainage of emotions to hold everything inside knowing u don’t get anything but frustration by expressing it to people who have no idea what we are talking about:
cheers
Sunflower sorry for late reply but u kno it be fine as I'm sure maybe we can arrange a time and day that we can chat on here and maybe ask if mum247 is about etc so we are then able to build up little routine and also anyone else who sees our chats can join in.. Although I have mother here and sons they all live far and its been very difficult to travel and see them... During covid was over a year and I had to move but my support wasn't allowed to visit.. Hospital appointments sometime became jus a phone call.. Times are and can still be very difficult.. So I totally get how isolating and hard it is when you have close by to sit and jus have a coffee or heh it lucky a glass of wine lol... I hope that we can maybe chat more and if you message I will always reply but til we can work out good time to chat and where we have hospital appointments fatigue or simply jus wanting to shut out world and don't want to spk to anyone.. We will all find a way forward or hopefully if can't someone on here will message like we have to help... Nite and sweet dreams x
Stay strong sunflower... Or maybe I will call you petal? ️ nite
My partner also has oesophageal cancer and it’s been one hell of a journey but never feel bad about feeling like that because I also lost a parent this year to cancer so hearing everyone saying it was going to be okay before it was confirmed drove me absolutely insane too. You’re not on your own and I’d like you to know if you want to talk to someone that understands what your going through I am here x
Aw thank you for messaging me . I am so sorry for your loss xx
My husband came out of hospital yesterday after a 10 day stay to rehydrate and intravenous feed him, he also had the feeding tube fitted . It was our first night doing his feed ,omg that was nearve racking but we got there in the end .
How is your partner doing ?
We have all the chemo to come yet . People don't understand unless they have been there just how bad it can make you feel xx
Xx j
Damn it .. I guess thats where I am heading in future. You guys are awesome and inspiring. My husband has been smooth so far. Very weak and he got these scary coughs . They are long and often often remind me of lung tumour causing them.
Yeah people got no idea what we are going through.
but I don’t blame them.
sometimes I don’t understand what I am going through. Just feel emotionally exhausted. But my love to my husband will not change a bit no matter how emotionally exhausted I am .
I would love to talk to u . I guess Mum247 would love that too depends on her scenario.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007