Hi
My gorgeous boy is at home receiving palliative care as there is no treatment for him now. I am struggling, I have a good loving support network around me. I am the o W dealing with his meds and all the teams involved in his care. It is harrowing grieving everyday for someone who you haven’t lost yet, but are losing everyday. What is my world without him? I feel I am so consumed in his care that I have stopped being Mum and a wife! I am struggling to keep all plates spinning.
Hi
I can only imagine what it must be like dealing with a child in that situation but recognize what you talk about about grieving - something we all share is the loss of the future we expected.
Do you both have access to any practical support that can help you get a bit of a break in being "mum" rather than nurse. If we look at Looking after someone with cancer there are some tips though perhaps the one I had to learn was making time for me and being nice to me because otherwise I just made myself ill and helped nobody.
<<hugs>>
Steve
Hi ,
The threads on here tend to focus on the initial post, there are some very long threads and indeed even a group where people can start or join in chats on almost any subject General Discussion
Typed answers don't work for everyone of course and so there is still the option to call and speak to someone on the phone.
Perhaps what worked best for me initially was a face-to-face meeting at Maggies and later on when I did a living with less stress course with them.
<<hugs>>
Steve
