Macmillan Nurses

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Hi, Can anyone help, ive just had a discussion with my friend whom lost her mum to cancer about a month  back.... My dad has now been diagnosed with cancer and in a discussion with my friend she told me that when a macmillan nurse is present at a meeting then its bad news as they are there help with end of life support and thats generally when you get one, or one assigned... Does anyone know from experience if this is true or not? I have my dads first meeting scheduled soon to discuss staging and if its spread ect and once again im in panick mode incase we walk in and theres a nurse present aels well as the Doctor. Thanks 

  • FormerMember
    FormerMember

    Sorry to hear about your dad... my dad has terminal prostate cancer  and having macmillian doesn't always mean its bad... they r there to help everyone.. when my dad first got diagnosed last year my mam got  a macmillian sheet with numbers on . hope this eases your mind... my inbox is always open... 

  • Im so sorry to hear your news, how are you coping, was the macmillan nurse there for you not long after your first visit for information from the doctors or did you have to call to request a macmillan nurse yourselves?... Im such a worrier, especially when it comes to my dad and i just dont know what to expect. Thank you. X

  • FormerMember
    FormerMember in reply to Wizzle21

    All I'm doing is making memories with me dad and taking one day at a.time.... with covid me mam couldnt go.to hospital visits with me dad when he first got diagnosed.. the consultant phoned her and talked her threw with it.. my dad couldn't wee properly so had  to be admitted to hospital that how they found out... with in 8 weeks his had spread and he couldn't receive chemo or radio or operate now we got told beginning of year he's got up to two years.or shorter... as it's terminal  the consultant told me mam that me dad had been allocated macmillian and that she was getting a support phone number off them too.. sorry don't know much more than that 

  • Thank you for the information regardibg the nurses, and my goodness, what a time your going through, im so sorry you have to be in the awful situation of all this, its one that no one ever wants to go through. Sending you and your family big hugs, stay strong. Xx. 

  • FormerMember
    FormerMember in reply to Wizzle21

    Thankyou so much and your welcome xxx

  • hi

    Often there are specialist nurses in the oncology unit that have been trained and have ongoing professional development through Macmillan but are employed by the NHS. With Janice's appointment the nurse has usually been present and she has been living with cancer now for over six years.

    Fairly early on we were referred to our local hospice, we went for an interview and are "on the books" but have had no need of their services so far.

    I did a living with less stress course that really helped me - the controlled breathing exercises were very helpful both when hearing bad news but also to help me relax (and sleep!). Learning not to try and live too far in the future - because I can imagine things much worse than actually happened. Transcendental meditation though - did not really work for me.

    <<hugs>>

    Steve

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