Not coping with partner’s diagnosis

FormerMember
FormerMember
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My partner has been diagnosed with sarcoma of the lung and heart. Simply put I am not coping at all. She is my soul mate, and it took me so long in life to find her. The thought of losing her is so unbearable.

I’ve got good support from family and friends, but everything all still feels empty and lost. I’m kicking myself because I’ve had a bad feeling about the small symptoms she’s had for a while, from the tiredness, anxiety, racy heart, to the slight dull pain in her chest. She’s seen GPs in the past but they all put it down to stress at work. More recently when she had to be admitted to hospital and they found she was having heart failure our GPs had diagnosed asthma.

I’m angry. This could all have been found much, much earlier if our GPs had been actually interested in getting to the bottom of the problem. Instead I feel she was fobbed off successively with the easy option. My partner is a nurse who has always given her all in others interest. She’s the most beautiful person inside that I have ever known. She doesn’t deserve this.

I just don’t know how to cope. I literally live for her. We do everything together. It’s a cliche to say that people can read others thoughts, but we really do seem to have the same thoughts about something at the same time. Without her my life would just be an empty void and I don’t think I can face it without her.

  • Hi

    So sorry to hear about your partner, my wife and I also met a bit later in life than many - in our case through the lonely hearts column in our local paper.

    Sarcoma, as I am sure you know is quite a rare cancer and the symptoms are often small and easily missed. Most doctors will never see a single case in their entire life. My my wife sees a new GP and she says I have Leiomyosarcoma they look it up on wikipedia.

    Like you I got to a point I could not cope and walked in to my local Maggie's, an our of mostly crying and a box of tissues and I realised something had to change in my life as I was breaking and that helped nobody. Some time off work to look after me really helped.

    Later I did a living with less stress course. I learnt that I was living in a world where my wife was already dead and it stopped me appreciating our time together - oh here people sometimes talk of pre-grief. Once in a while there are bad things happen out of the blue, I learnt a technique of step back, take a few deep breaths and then back to the struggle.

    I was fortunate enough to attend an aunt's funeral recently - one thing the celebrant said really rang true - grief is the price we pay for love. Would I give up one day, one minute of my time together with my wife if it meant I could avoid the pain I have gone through - well of course not. 

    I am really glad you shared this on here, do post again whenever of if you want to talk to someone the helpline is open and staff there would be very willing to listen and talk. 

    One thing my wife really hates is when someone says to her that she is brave - now she looks at them with a glare and says "when was I given a choice".

    <<hugs>>

    Steve 

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  • FormerMember
    FormerMember in reply to src60

    Thanks Steve. I can full appreciate what you say about living in a world where your partner has already passed away. This is pretty much where I am and it is eating me up. I am finding that I can even focus on doing simple things like cooking an evening meal for us both. Even walking the dog is painful because we’ve always done it together. 

  • FormerMember
    FormerMember

    So sorry to hear your horrible news. Its so unfair when she has always been there for others, I really hope you get the help and support you deserve during this challenging time.

    It's hard being the other half when one is going through cancer it hurts not being able to help, my Hubs is reluctant to take help and I'm becoming frustrated as he is really poorly,  what was supposed to be the easy option having TAMIS procedure for bowel cancer he is unbelievably unwell lost weight collapsed a few times but won't let me call paramedics and becomes angry.i we were  married at 17 yrs old 46 years ago .just don't know what to do...

    Monday hug to everyone Kissing heartHeart

  • FormerMember
    FormerMember in reply to FormerMember

    My wife if 31 years is also my soulmate.Her chemo was stopped 3 months ago and she has now got a pallative care nurse.She is tired very easily and not eating much.

    I too can not concentrate on anything and i have always been active.

    My appetite has gone completely.

    How on earth do we get through this?

    You wouldnt wish this on your worst enemy.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Steveho

    No you wouldn't wish it on your worst enemy nevermind the love of your life, my heart goes out to you both but you must try and eat so you can be there for her,  watching someone so dear to you suffer is the worst thing ever, I wish I had an answer for this nightmare but keep coming here for a chat we're all here to support you. Are you able to get some support from macmillan nurses for you? I hope you can and share your feelings. 

    Love to you both. X

  • FormerMember
    FormerMember in reply to FormerMember

    Hi  Chardie.

    Thankyou for your support.we dont have macmillan nurses in my area but we do have similar.we have a pallative nurse who is visiting on wednesday.x

  • FormerMember
    FormerMember in reply to FormerMember

    Well you get some help for you too. Thinking of you.

  • FormerMember
    FormerMember

    My partner is currently in the QE in Birmingham having her first rounds of chemo, Doxifos. The oncologist was careful to temper our expectations. He has told us that if they can halt the growth that it would be considered a success given where it is. Obviously if more can be achieved that will be better. Because of where the primary is they have no idea how successful the treatment could be. I can only hope that my partner can prove them all wrong.