Hi,
this is my first post I’ve had a friend suggest come on here to get support, help and advice
my mum got diagnosed in March with lung cancer which had already spread to 2 parts in her back previously to that she had just been struggling with back pain no symptoms to the lung cancer, she had an operation on one part of her back to save her mobility, she came out of hospital the weekend before lock down I came down to see her for a day stayed over then lockdown happened so I made the choice to stay at my parents home I ended up taking over all her care from then on, then in may on her birthday we couldn’t wake her up and this went on all day my dad phoned for an ambulance and found out her oxygen level had gone to 55, previously to this she had had 2 sessions of radiotherapy on her back and had been talking about starting chemotherapy.
while she was in hospital we had found out the cancer had spread the doctor was saying she was weak and thought she only had days left also from her discharge notes found out she’s at stage 4
when she came out of hospital she has struggled with her leg and not been out of bed since and I’m now noticing more things happening like the confusion, hallucinations even forgetting things and last week her hands started shaking and she spilt her brew over the bed and now noticed she gets the shakes when eating as well and her temper coming out and it’s me who gets it with doing all the caring
I’m wondering if the shakes is another sign it has spread to Her brain
thank you for any advice
Hi and welcome to the community though so sorry to hear about your mum.
From what you say things do sound very difficult but even the doctors would not be able to diagnose symptoms. Clearly something is going on and it is probably worth talking to the doctors about it just in case there is some treatment that might help to make it easier for her to cope and in turn easier for you too.
It is all too common for the person who you love the most to suffer the most from negative feedback from the patient - is is sometimes worth remembering it is not the person you love but the cancer and the pain and frustration they are feeling. Do come here or ring the the helpline if it will help you to find a way to let some of your own frustration out - we do understand it is hard but we can stand with you in spirit if not in body.
<<hugs>>
Steve
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