Mum diagnosed with lung cancer

FormerMember
FormerMember
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My mum was diagnosed with lung cancer two weeks ago . She was told that they could only drain the fluid of her lung and that was it . She has had that done today . So hopefully she can breathe better . I feel that we have been left in limbo . I feel that we haven’t been told anything . I realise my mum is scared and she doesn’t want to stress me but it’s worse not knowing nothing .  . 

  • Hi @redhead46,

    while hopefully draining the fluid has helped it sounds very unusual to say there is nothing else they could do. Perhaps it might be worth giving the nurse or her GP a call to get a better explanation. Normally at least they would want to keep some kind of eye on things.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60
    • Hi Steve thank you for replying to my post . I think they meant they couldn’t offer her chemotherapy or anything but because of the bloody virus they couldn’t say much else not allowed to talk much face to face . She spoke to nurse day after but she is trying to come to terms it herself she trying to protect us I understand that but just want to know what’s happening. I know I am not next of kin as her husband is however they nearly split up so that’s not helping .  We are just in the dark . . Will have to see what they say after the drain took out x will the nurse or gp speak to me . 
      thanks redhead46
  • FormerMember
    FormerMember

    hi just want to have a chat / question . I was with my mum when doctor said they wouldn’t be treating her except drain  in chest . She has now had this done  I thought they would of told her more about her diagnosis. But she just said that she can’t have chemo because of her other illnesses . This is has left me in no ones land because we just don’t know anything . What stage she is at . Why they are going to do  not anything  do we have a time scale  ? Does anyone know if I ring the nurse they would help me . I not sure whether doctors aren’t telling her or if she is in denial  . Just feel lost  I am a student nurse and I know usually a h n there isn’t treatment it isn’t good 

  • Hi , some kinds of chemotherapy can make other conditions much worse so the doctors following their "do no harm" promise would not offer it. However I would hope they would look after your mum in terms of keeping her as comfortable as possible.

    Generally experience on here has tended to support not asking for a time scale unless it is very important for some reason ( insurance, welfare payments etc). Any time scale is at best going to be an educated guess based on old data and of course would not likely include any of the other illnesses your mum suffers.  We have seen many people blow a prognosis out of the water, a few people who might seem to give up and die to order and a few where the patient did not make it that far where the family end up feeling somehow robbed. It is a bit of news that cannot be put back in the can.

    It is quite likely the doctors do not actually know the answers you want, despite all their best efforts there are still a lot of unknowns and sometimes even doing the tests to find the answers is unhelpful as it would not make a difference anyway.

    You talk about being a student nurse, do you tutors know what your mum is going through? I am sure there will be some support services available to help you manage in this really tough time for you.

    <<hugs>>

    Steve

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  • FormerMember
    FormerMember in reply to src60

    Thanks for replying steve. I understand about the timescale I wasn’t really asking that . I understand  about the chemotherapy but it just feels like they have sent her in way I’m sure they haven’t that’s why I think it maybe more my mum which is finding out . But she isn’t due to see th again till September so obviously no treatment between them . University isn’t aware as I have took time out for other reasons ( daughter not well as well) . I just thought they may tell us what to do if and when she gets worse . She is feeling abandoned abit by her professional as she rang them a few times haven’t rung back . 

  • Hi ,

    If your mum is not getting the answers she needs for the hospital than another route is for her to contact her GP who might be able to help and it that does not work then the hospital PALS service can try to clear communications issues.

    Of course recently lots of hospital resources got diverted to covid - there is the potential for a real problem down the line since some people are not even going to the doctors at the moment and so there is likely to be quite a lot of people worried about cancer but not getting either a diagnosis or an all clear.

    Hope the studies go well and sorry to hear about your daughter too, is does sometimes seem life just wants to throw one thing after another at as.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Thank you Steve 

  • FormerMember
    FormerMember

    My mum was also diagnosed last week I’m here for a chat if you need x