Hello, I’m new to this group but not new to the Cancer experience unfortunately ! My Husband who is now 36, had testicular cancer at 17 (before we met ). It then showed up in his prostate and he had a few issues which he refused to discuss at the time, he said it was through embarrassment etc. That was 8 years ago, fast forward to now and sadly it has spread to his Lymph nodes.
He is very independent and wants to go through this alone, I have tried to respect his wishes because it’s his journey etc, but in the past week he has developed Lymphoma patches in various places on his body, 6 I can see, previously he had 1 on his calf that had broken down and was dealt with at the hospital, the new ones have not broken down and look like fresh burns. I’m terrified of what will happen next the situation with Covid is complicating everything. We are in lockdown with our 7 year old, a typical boisterous child who can’t understand why his Daddy is unable to play football and let him jump all over him. I am like many others currently furloughed so he cannot hide as much as he usually does. He has good reason to behave like this his initial diagnoses was dealt with terribly by his close family and it has made him so sensitive to those around him, ask him one question and he explodes with frustration.
The real issue I guess is ‘how am I expected to support him from behind a wall?’ And ‘how and what should I do in terms of future planning?’
Has anyone else experienced either the Lymphoma sores or the frozen out situation at all??
Hi
My husband was diagnosed with grade 5 Gleason 9 highly aggressive cancer last November. I’m glad that he should now start radiotherapy in about 4 weeks. He is 57. I sympathise with you. This lockdown and shielding has been hard and I often feel I’ve been walking on eggshells. Fear of the unknown and worried that cancer treatments were stopped but knowing it was always there. Husbands mood was really down thinking this was the end. Now treatment is planned he is feeling better.
It’s hard being together 24 hours a day and one of our adult sons is at home. My husbands constant hot and cold flashes means he is not really sleeping so is now always tired, on edge and yes, frightened.
I have always believed realise what you can’t control and know that worrying does not help. This forum is great with people who have been on the same horrible journey giving support and sharing their story.
Sometimes communicating with each other is simply being there through good and bad, a shoulder to cry on. Hopefully your husband will be better when treatment plan is in place.
it must be so hard with you both being so young. Your husband must have so many feelings which continually change.
Be strong for your son. Children realise when something is different. They are also a good reason to be determined to fight this horrible disease with everything you can.
Always know that people are thinking of you.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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