Anyone any experience of Lenalidomide?

Hello, I was so sorry to read your post, you must of been feeling very worried about your mum.  My mum is aged 73 and has recently started Lenalidomide, today, as her last cocktail was not working as well as it should of been.  Has your mum improved at all in the last couple of days?  My mum is very sleepy today but we are hoping that this may settle, I am wondering if it may be best to take Lenalidomide at night time if it makes her so sleepy?

All the best to you and sending you an elbow bump!

Hello,

I wish your mum all the best for her treatment on Lenalidomide & I hope she tolerates it better than my mum did. I rang the hospital clinic yesterday to really get some reassurance, as she still had a week of the cycle left almost. 

They took me through a series of questions & then took the notes to one of the haemotology doctors. I think they're querying toxicity & told her to cease her medication mid cycle with immediate effect. Her 2nd cycle was going to begin on the 28th so they'll review her before then. Whether they want to see her face to face or over the phone we don't know yet. I hope it's face to face cos mum will just go "I'm beginning to feel better and I'm not in any pain." However, she basically has no quality of life just cat napping in bed all day and so weak she has no concept of the day time. May I ask what strength Lenalidomide your mum is on? I work in pharmacy so I know the next one down is 15mg so I would expect my mum to tolerate it with a 10mg reduction in the dose because is sort of fit, healthy and normal weight or should I say was. It would just be good to know how long it takes to recovery from toxicity because she is still the same after nearly 2 days without it.

Thank you for responding & *elbow bump* back at you 

Steph