My grandmother who is 83, type 2 diabetic has been diagnosed with locally advanced pancreatic cancer. I live in Australia and came home for Christmas and decided to stay until we had a diagnosis.
My grandmother has been suffering from loss of appetite and diarrhoea since November and has lost about 3 stone. She is in no pain, just fatigued. She manages to get up every morning, can still care for her own basic needs and manages to go to the shop with my grandfather for an hour once a day but then gets very tired afterwards.
On Wednesday we got told it’s not curable as it’s inoperable, she could have chemo but will only give her extra 8 weeks on top of prognosis which as been given at anything from 3-18months. However as a family we don’t particularly want her to have chemo and prefer her to have some quality of life while she still can. She has also now agreed not to have chemo.
Since she has been told she is going on with life as if nothing has happened, she was getting very irate with us when we were asking about chemo or not. I feel she may be in a bit of denial as she said about getting a 2nd opinion and chemo, but had to tell her chemo won’t make her better.
What I am struggling with is, do I go back to Australia and work? Or do I stay? I know pancreatic cancer is a horrible one and prognosis is usually not long. I find it so hard being given a broad time frame. Do I stay and come back? Or do I stay at home not working waiting for things to happen? I feel like I’m abandoning my grandmother and loosing my support network.
Does the downhill spiral of pancreatic cancer happen over night? It’s so hard to know with her age and type 2 diabetes.
Any information or help will be greatly appreciated.
Dear
i am sorry to hear of your grandmother’s diagnosis. As you have stated the perameters around prognosis are so wide it’s very difficult for you to decide whether to stay in the uk or return home. Although disease progression will be different for each patient the need for end of life care will be the same for most people, so it’s important to make sure your grandmother is on the radar of local palliative care services both in the hospital setting and in the community as these are the experts in giving her the best quality of life. So for now let her set the tone and do her own thing as this seems to be the thing that is giving her some peace of mind. If you decide to return back to Australia make sure you spend some quality time with her and say all things you have in your heart, and then keep in touch we texts, emails or letters. Being there at the end of life when it’s likely she will be receiving pain medication etc may prove less comforting to you than creating some happy memories now while she is relatively stable but fatigued. I hope this is of some help in a difficult situation, pancreatic cancer is a very difficult disease to treat.
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