Struggling!

FormerMember
FormerMember
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Hello, I have not posted on this group before.  My husband Richard was diagnosed with a stage 4 GBM brain tumour last August.  He had surgery, has had 6 weeks of radiotherapy and 5 rounds of TMZ chemo but we have just been told that the tumour is back.   We have app with surgeons on Monday re another op and then 6 rounds of PCV.   He is devastated as he is was doing so well and I can’t do anything.  We have 2 sons - 19 and 15 and I am so scared for them. Don’t know how to cope 

  • Hi and welcome to the community, sorry to hear about your husband and can but wish you the best for the appointment on monday.

    To have been through so much that you have gone through so far is amazing, I certainly think many of us on here can really relate to the idea of not knowing how to cope - hope you find coming here a great support for that is something we all recognize. One thing we all have come to recognize is that we need to find some way of looking after ourselves because if we break then we cannot support the ones we love. It might help to look at I'm looking after someone with cancer  and perhaps most importantly keep talking. Often talking with people in a simial situation is really helpful. One thing that people often talk about on here is pre-grief and one of the things I picked up from a living with less stress course I did was to try to keep the focus on the here and now and appreciate the good times. With some other stress issues I have had my GP prescribed eco-therapy (got for a walk) and if it helps do consider talking to your GP too.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Thank you for replying.  Everything rings true.  The one person who I have relied on for support for years and years is the one I am supporting now so it’s quite lonely 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi I’m new on here and just finding my way around - (so apologies if I’m missing the obvious!) but I tried to open the link Steve sent you about “caring from someone with cancer” but it wouldn’t open for me. Any ideas? Many Thanks 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi 

    Hi and welcome to the online community and I am sorry you've had to join us, this really is the club that no one ever wants to join but you found us and I'm so glad you've reached out to us and I hope that we can be of help and support to you by answering any questions you may have.

    Being a carer can be a difficult one and sometimes you feel as you are swimming against the tide and are all on your own. By being a member of this forum you have become part of the Mac family and we are all very supportive towards each other. This is a safe place to come at any time for a chat, to rant and rave or just to let off steam we all do it and need to release our emotions and you will be amongst friends who know exactly how you are feeling.

    I'm sorry that the link Steve tried to give you appears to be broken but you can try this one Looking after someone with cancer you can download the booklet in various formats and I hope it will be of interest to you.

    Another group that you might want to join is our Prostate cancer forum group.

    Anytime you have a question on anything just come on here no matter if you think it's silly if it's in your head ask it and get the answer all the members of the groups are very friendly and will share with you their experiences.

    If you have any trouble opening up the links above please give me a shout and I'll help you, I should mention when you request the book Looking after someone with cancer you will be taken to a new Macmillan site and to order the book you may have to sign in just use the same email address and password as you use for this forum to set up your account.

    Hope the above helps.

    Ian

    By clicking on any of the green text above will open up new pages for you.