Having a bad day

Quickie catch up. Hope all are coping with remembering to breath and take care of self. I get it and hope you are given respite from yr 24 hrs a day care. I dont quite have that level of physical reaponsibility but do emotionally. Anyone can be pushed to a limit but thankfully we can walk away and regroup ourselves for the next onslaught. I find screaming very loud while driving or the other night in a deserted car park helps. It certainly is a shame it took this for u to get the help you so desparately need. Ive found the squeakiest wheel gets the oil but its exhausting being as squeaky as ive had to be. Mummy is passing wind regularly and has sat in the chair at the hospital for an hour, how amazing is she, i swear if i had to go through what she has i may have taken a decision to go to switzerland, i did offer when she was down but her response was 'but my passport is out of date'! She is getting wonderful care in Norwich NNU and although i know she wants to go home its lovely knowing they can attend to all her pain and ailments with her tubes and bags, i fear having to do that at home. Lots of invisible love being sent to anyone having a tough day. X

I've just had a call back from Mental Health, & they're calling me again tomorrow. I also heard from Ann at Intermediate Care. She's going to try & get a night sitter for tonight so I can take a sleeping tablet & not have to worry about Alan. 

Jenny, your poor Dad It's the indignity of it all that gets me! I ended up putting a puppy training pad under Alan last night as he was worried he'd wet himself. 

Big Hugs to all 

Xxx

Oh good an entire night will do you the world of good. cheaper and bigger are the mats in the nappy section for children when they are learning to be out of nappies plus they stick to the sheet. Weve been through 100s and they are useful in chairs as well x

Maisiemae your Mum made of steel

Their care for putting your mind at rest for now too.

Squeaky wheel definitely what's needed but it gets tiring. 

I thought of Switzerland too. Not my mum's way though.   Also imagine getting her there! 

Mental note to always have enough money in my account for Switzerland for me I mean when older ...both my parents have cancer after all.

Jx

I've got the puppy pads already as one of my 12 year old cats stress wees up the door & it's easier to clean up

Xx

I just had a call. I've got a sitter from 10pm tonight so I can safely take a sleeping tablet. We're getting Carers 4 times a day to help with getting Alan to the toilet, washing him etc. 

Am I allowed a huge PHEWW!! 

XX

Shopgood Def a huge phew...

Jx

maisiemae, your mum is amazing.  They're tougher than we think!

Sue, thank goodness you'll be able to get a good night's sleep and you've got the carers coming in to help.  Hopefully, your stress levels will come down a bit.

Jenny, I'm glad things are moving in the right direction with the hospice, etc.

Sounds like a (sort of) good day for everyone.

Mum's not too bad.  Her mood is improving and she's more engaged now.  The antidepressents have also helped with the pain.  It still hurts when she does a wee but the stabbing pains have eased.  

The nurse has left a leaflet about a voluntary organisation that befriends people.  So we can get someone to sit with mum for a couple of hours but they won't make food and we really need someone to make her tea in the evening and I think we need someone to come a couple of morrnings to make her breakfast too, so will have to look at carers.

Hopefully you're all feeling a bit better tonight. :-)

Back to work today. Sitting on the train. Feeling very nervous.  

Hope today goes well, look after yourself and take one day at a time

Take care, good luck and will be thinking of you today.

Tracy xx