Having a bad day

Dear all. Alan sounds as if he is dehydrated (or infection)  as well as .......  You cant be alone with all these symptoms, please do call someone, he clearly needs something i suspect a Dr can provide. Please dial 999. Time for intervention and through no fault of your own this is beyond you being able to soothe him. I am reaching out and clasping your hand. Plse make that call, he is too unwell to be in charge of his care. If he is annoyed it wint be for long xxx

Sue, I hope you've managed to get some help, either GP or hospital.  I'm sending you hugs.  Wish I could come and be with you.  

My daughter has just told me that her best friend may have cancer. They are just waiting for the results. She's 15! I can't bear it.

I had to call the out of hours service yesterday as Alan was delirious again. Doc came, left prescription for liquid antibiotics. Told me to call the GP this morning. 

At half 6ish I was woken by a crash! Alan on floor in hallway. No walking stick & didn't know why he was out of bed. Got him back to bed, bump on head but no blood.

Called GP once they were open. Got told to call Community Nurse. They came, checked Alan out & called ambulance as they thought another infection.

Paramedics came. Alan answered random questions so considered having Mental Capacity. When told he needed hospital he refused. I broke down. Even begged him to go. He just said we were trying to get him out of the way. Paramedics made phone calls to GP & Community Nurses. Promised someone would come. Made me a cuppa, asked me if I needed hospital, I should've said Yes. Now here waiting again. If I don't hear from or see anyone by 4 pm I can put an official complaint in about GPs & Community Nurses. 

Had to cancel dentist for more antibiotics as I was scared to leave Alan. Paramedic said to go out if I want. As Alan's considered to have Mental Capacity if he get's out of bed & falls again it's down to him. 

I told Paramedics that I could understand why people kill their loved ones. She told Community Nurses that. Who knows? Maybe we'll finally get support. 

Sorry to be so negative, I know I'm not the only one struggling. 

Big Hugs to all 3 of you. Thinking of you.

Sue x

I've just had a visit from Intermediate Care. We're getting someone in later to help Alan wash & get to the loo.

I've been referred to the Crisis Team. Palliative Care are coming tomorrow & a Respite bed at Myton Hospice is being arranged within the next few days.

I finally told them I was worried I was going to hurt Alan or myself. Why does it have to get to that stage before you get help. 

Hopefully I'll sleep better tonight.

Big Hugs to All 

Xxx

Oh Sue, you've got every right to be negative.  it's a nightmare.  As if you're going to go out and then shrug your shoulders if he falls! 

I hope you get some help.

Sending you hugs too.

Hi Sue 

You did the right thing telling them exactly how things are. 

Respite sounds excellent idea. You get break he gets pain symptoms and infection managed.

Having difficult time here too pain on movement for mum nearly fainted twice. Urgent transfusion so ambulance tomorrow first thing.  Said I can't move her myself any more too painful for her. Also got dad to sort tomorrow as new dialysis regime.

Hug.

You must be exhausted. 

Jx

Thank goodness you're getting some help.  Like you say, why does it have to get to this stage before they do something? It could have been so much easier for you all if they'd pulled their finger out sooner.  Makes me so mad.

Take care and hope you get some well deserved rest Sue.

Hi Jenny,

Your poor mum.  What dialysis regime did your dad decide on in the end.  Is the one that's far away?]

Hospice called me re respite...and other things my head spinning and feel weepy.  No immediate help but starting process. 

Dad is dialysing in temporary hut at hospital as ward condemned by QCC. He's now doing 12-4 slot so thought had lay in tomorrow but ambulance for mum at 7.30 am

How's your Mum Elenium?

Jx