I remember reading on this forum that the most stressful part of all this after a confirmed diagnosis is often the wait for a treatment plan - which it seems is usually a few weeks. I’ve been in that waiting room for 12 months, unable to plan or prepare for anything, and it has affected every aspect of my life. I have found the process so dehumanising, and it made me feel completely ashamed and alone. I've totally isolated myself and am now taking medication for depression.
I’ve not shared my diagnosis beyond 2 people - or with my family - as I have been waiting to know the treatment plan before worrying them. Given what I have been through and how long it has taken, with every day that passes it now feels impossible to meaningfully bring anyone else into this.
I don’t know if anyone here has been through anything similar, but I am sharing just in case as the isolation is killing me. I am hoping that once I finally get surgery I might be able to put things more in perspective, but I've lost all sense of the ground beneath me and am terrified about what might have changed in a year. If anyone has any advice to share on how to get through this who has been through it, I’d be so grateful.
