Tearful and frightened

Hi Lisa 1970 sorry to hear about your diagnosis and your ongoing challenges.

Navigating a cancer journey like this can be such a stressful and challenging time but getting support from people who are walking the ‘exact same' journey can help a lot. (I have been on my journey for over 25 years with a completely different incurable cancer)

As you know the Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend put up your own post in our dedicated Pancreatic Cancer Support Group.

This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

         Pancreatic cancer

You may also want to look at our dedicated…..

Living with incurable cancer - incurable patients only

…… support group as this will connect you with others navigating the incurable journey.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community.

All the best for the treatment. Am stage 4 terminal bone cancer and it's a real emotional rollercaster. Crying / mood swings ..the full works. Keep apologising to my wife for being a burden...

All I can say is you are not alone and try a do something that makes you happy each day.

Good luck

Hi Marty

Thank you so much for replying.  As you say, total rollercoaster.  I am up and down from minute to minute.

My husband hears exactly the same from me.  At 54 I didn't expect to be a burden just yet!

I am definitely trying to do something nice 3/4 times a week however little, it may be.  I try not to out too much pressure on myself now.  Good days are a blessing and I deal with getting through the dark black days.

Look after yourself 

Lisa

Hi Lisa

It is a really horrible thing to deal with mentally. I feel worse mentally than physically. I've got secondary breast cancer with mets to lungs and liver. I'm waiting for an oncology appointment to see what treatment etc.

I find I'm very up and down too. Better if I'm distracted so I'm worse in evenings. I think you've got good strategies in doing something nice and not putting pressure on yourself and appreciating the good days.

• I've been advised to try not to think into future, try not let the future spoil today and when I'm in the down thinking go and do something else. Not easy at all and I need to work on my emotional/mental feelings.

Wishing you all the best

Stripey x

Hi, stripey at, hope you don't mind me replying in your post but that comment about being advised to try and not to think into future etc has got to be the best bit of advice I have seen since being diagnosed with those awful disease.

My sister had a brilliant idea when my husband was getting ready for chemotherapy before any potential visible side effects. We pooled together and got a photographer to a 3 hour outdoor photoshoot. Its not often we have professional family photographs so it felt special. We had a great time and made some great memories. We still talk about it.

My husband also has a journal he writes in. I read it and see how dark it is, but he says that he is able to get it out of his system and feels better, so he finds it helpful. He says writing about it helps him moves through his feelings.