I suffer from CIPN which has got worse over 10 years following my second course of chemo for secondary breast cancer in 2013. I was never told of the long term possible side effects of CIPN and was informed that the numbness in my feet would just subside however this was not the case and 10 years later l have to walk with a stick. I am unable to walk up stairs and my legs have constant pain. The neuropathy is getting worse and l am so frightened l will lose my mobility and independence. I dread each day as l know that l am never going to feel better and feel l have no quality if life. I used to be so active and have a little dog that l am now unable to walk. Is there anyone who is suffering from CIPN after many years ? I continue to have my immunatherapy drug every 3 weeks which thankfully is keeping my cancer stable for which l very grateful and feel lucky but ironically its the effect of the past treatment which is making my life so miserable. My poor husband wonders where is fun loving active wife has gone !!
Hi Lallylo .... I see that your post had not received a reply so just wanted to drop in past to recognise the challenges you are having.
I had bad Peripheral Neuropathy caused by my 2 + years of full on treatments...... mainly in my feet and hands.
At the end of my treatment in Oct 2015 I left the hospital in a wheelchair and it took a good 4 months to get back on my feet and walking with walking sticks........ 9 years on I still have 'some' issues with my hands but nothing as bad as it was 9 years back.
Thankfully your Immunotherapy is doing the job...... and lest hope that a way forward is found for you to get some of the long lasting effects reduced ((hugs))
