Hi. My husband had a radical cystectomy 5 weeks ago. So far, we've coped fine, but there's two things that are worrying. He lost quite a bit of weight after the operation and he's finding it hard to gain some back. He eats 3 meals per day and snacks between them. But the weight hardly goes on. I talked to his doctor and she told me that the calories are being used up by the healing process. Has anyone come up against weight loss?
The second thing is trying to cope with his fear. He's on anti depressants since the operation, but he's impatient and wants to be able to do more than he can. When he pushes himself, it tires him out and, after he sleeps, he becomes withdrawn. I try to keep his spirits up, but sometimes I have to walk away. This leaves me feeling guilty. He's going through an awful time and I feel for him. Also, we haven't seen our daughter or grandson for 10 days because they've had covid. We're isolated and trying to get through this. Has anyone any ideas how we can cope better? Most days are okay, but there's always the day when we both need our own space.
This disease has turned our lives upside down. I think we're getting there, but any suggestions are welcome. Thank you.
