hi,
my husband was diagnosed with AML at new year and has been in hospital since with just 2 weekends at home. Frist chemo didn't work which was a huge shock considering we were led to believe that it would work.
2nd chemo has been hard but i am trying to look on it that as it had bigger side effects this one has got to be working - Flag IDA and Venetaclax. Husband is so tired and fed up of being in hospital that he has said tonight (just before i left) that he doesn't want to have any more treatment and he'll just have to live with Leukemia. I said that's fine IF you can live with it and he has said "but you said you can" - i said "no I said some people do" - I also said the best course for a cure would be better. He got very upset. I'm going to go in early tomorrow to try and talk to the doctor on their rounds but I feel awful saying it, he needs to concentrate on getting better and not on getting home and being "bored". he has no interest in doing anything to try and alieve the boredom, no matter what I suggest he doesn't want to do. I have to work as he has lost his business and hence his income so I am the only wage earner. My works have been very good changing my hours etc but I cant be in the hospital all the time.
I am taking him out of hospital for short stints, to get something to eat and hoping to bring him home for a couple of hours Saturday & Sunday this weekend but I think he'll see this as a negative because a. he's very very down and b. because he cant be here all the time.
I dont know what i'm expecting anybody to answer, i just wanted to tell my current story - maybe any suggestions if people had been in a simialr situation?
