Hello,
I'm new to this group. I’m 38 and this month sparks the anniversary of me starting my treatment for cancer. I’ve been told in December I’m in complete remission of my non Hodgkin’s lymphoma and that is amazing.
I thought I’d feel relief and be happier. And sometimes I am but not all the time. I have anxiety and depression anyway and I’m good with that. Since I got the good news from the consultant I’m still extremely emotional. I react (with tears) to the smallest things like things on the tv or even something nice being said to me.
I’m finally back at work and getting back to a routine and I’m trying to work that around looking after my son 50/50 with my ex while also trying to make a long distance relationship work but still feel emotionally drained or that my emotions are overtaking so makes me feel like I don’t want to do anything but lay there.
I’m hoping this will just pass after such a horrible year last year but was just wondering if anyone else was dealing with anything similar and how they coped?
Thank you
Hi Bmb2ab and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
Well done getting through your treatment and reaching your one year out and being told you are in remission but this can come with some baggage.
I eventually reached remission back in Sep 2016 but it took 17 years to achieve this as I only ever was in partial remission over the first 17 years and these only lasted 9 months at the most….. see my story through the link at the bottom.
Treatment for Lymphoma is such a different journey compared to many other cancers so it may be worth you joining one of our Lymphoma groups as you can then talk with others who have walked the exact same treatment journey.
There are over 60 types and subtypes of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
If you'd like to connect in with a group click on the (Bold) Group Text Link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post.
I will keep an eye open for you in the groups and we can carry this conversation further with the advantage of having others with the ‘T’ shirt to help out.
Hi Cal CalDG and welcome to this corner of the community but so sorry to hear about the challenges you are having. I have no first hand experience that I can bring to you but you may initially want to call our Support Line teams who are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat as the team may well be able to give you some pointers for getting support.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
You may also want to check out our dedicated Ovarian cancer support group where you can connect with others who have been through the same treatments.
