Hi I was diagnosed with breast cancer May 2022, had a single mastectomy in July 22 and just finished chemo, I also have the brac2 gene so waiting on further preventative surgery for that but at the moment I feel really lost.
it sounds weird but I miss going for bloods and chemo every week but now that's done I don't know what to do? My family want to make plans but I dont?
Hi Tan04 and a warm welcome to the Online Community but so sorry to hear about the challenges you are dealing with.
The cancer journey can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
As you see the Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive BRCA positive and Breast cancer support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Links I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
