Hi all,
I'm coming to the end of my treatment for folicular lymphoma...I've been told of the risks of it coming back or I could need more sessions if things don't work out...
I have seen a change in the mass,but obviously the swelling is still bad. I have also started relying on my walking stick less...this is all good...right? But for some reason I seem to be having a hard time realizing things are improving. Like part of me is in denial after having it for so long...
I'm really fighting with these feelings and sometimes it overwhelmes me..
If anyone has had similar feelings please let me know as I could do with some advice on coping with these feelings..
Many thanks
Hi TKjedi, great that you are coming to the end of your treatment - well done.
I have a different type of Low Grade Non Hodgkin’s Lymphoma and like your Follicular Lymphoma it’s incurable but very treatable.
Over my 23 years I have relapsed multiple times and up until 6.5 years ago the longest remission I ever had was 6-9 months but I am 6:5 years out from my last treatment and living a great life.
It takes time to develop an acceptance that you have to ‘live’ with you condition but unlike many chronic conditions there are lots of treatment available ‘if’ and when required.
You may want to copy this post and put it in our dedicated Follicular lymphoma group as you will connect with other who are walking the exact same journey.
Always around if you need further help or just to chat.
