Think we're approaching the end

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Hi, 

My mum has had bowel cancer since October 2018. We found out her first line chemo hadn't worked this time last year, and then in November her second line failed. She has a mutation so there's no targeted therapies and we tried looking for trials but to no avail. She started third line a few weeks ago but was being sick and suddenly not eating. She went into the hospice for symptom management and they believed her to have bad constipation. They got her eating (not a huge amount but still more than she had been) and she came home Monday but she's now really weak (not helped by not walking in the hospice) and so anxious - at night she's really restless and wakes me at least every hour to try and help get her comfortable. We have had one good night though there she slept through, and the hospice nurse thinks it could either be heightened anxiety as she has just come out of a hospice and had some difficult conversations, or that it could be the beginning of the end. I know that the signs are suggesting it could be that. She's not eating a great deal again and her drinking isn't amazing, but she's also worrying a lot about being sick. We've got an appointment with her oncologist (finally) on Wednesday to discuss results of the latest scan and find out if this is the end. 

It's just so hard to watch her get weaker by the day. I'm an only child, she's all I have and we don't have any family support in anyone who would come and help. We're both exhausted, I'm trying not to get upset in front of her and am conscious of making memories, but it's just so overwhelming. 

  • Sorry to hear how things are progressing with your mum. This is such a challenging time for all involved. I have no experience that can help but you may want to join and post in our Supporting someone with incurable cancer group where you will connect with others supporting family during this hard time ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi Kirsty, I am sad that you are having such a difficult time, I can't imagine how difficult it must be to support your mum all alone. My granny died of bowel cancer several years ago, we were able to get help at night from the Marie Curie nurses, they came in one or two nights a week which was really great. I hope that you can find something like this to support you in looking after your mum.

    Best wishes 

    Sarah 

  • Hi Kirsty88, I hope by now you've found some support for your mum and yourself.  As Salis said Marie Curie are brilliant and also your local palliative (hospice) care team can visit and support plus advise your mum's GP on control of symptoms so she has no pain and nausea.  

    I know you posted 6 days ago and maybe things have changed since then.  It is natural with advanced disease to become weaker and suffer with loss of appetite as the body winds down.  If your mum has come to the end of positive treatments then increased tiredness and weakness is natural and very unlikely to improve at this stage.  She may spend a lot more time sleeping.

    I wanted to add something about memories, you don't have to rush around making new ones right now hon as you already have them safely in your heart. Nothing can take those away from you, ever.

    It's lovely that you are close to your mum and that's a  very precious thing but it is ok to be upset when you're with her right now.  Your mum knows what is going on as do you and honesty sometimes can assist in maintaining the closeness you have already. Crying and grief are natural and normal and can enable you both to share precious memories right now and smile and laugh too.  Plus you don't want to lose her with things unsaid and it can give you both opportunities to do so.

    Your local hospice I'm sure may take her in for some respite care and they also will be a good source of info for support for you both.

    Lots of love and huge hugs to you at this sad time lovely lady, I hope things get easier for you both physically asap xxx

  • Kirsty88, I really hope that your mum has been comfortable and free from pain since I last posted.

    I hope also that you've both spent some valuable precious time together hon and that you managed to access some external care services to relieve your stress.   Sending you lots of love xx