Hysterectomy, LVSI, radiotherapy - this is all behind me, why do I feel numb and sad?

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This has been a quick journey, saw my GP in September, had hysteroscopy, then hysterectomy, results showed I had LVSI, so 20 sessions of external radiotherapy which finished on the 15th of April. Quite bad side effects, loose bowels from day 3, discomfort when peeing and radiation burns. I’ve been quite emotional, but now that the treatment is over I feel nothing, friends and family are so happy, but I’m not. I feel like a fraud, I didn’t have to have chemotherapy, only radiotherapy I’m confused and don’t know what I should be feeling.

  • Hi

    I dont think you are unusual. There is a specific forum on here " Life after cancer". It would be helpful to talk to others who have felt the same. Good luck with recovery.

  • Hi Jenliveh, sounds like you are feeling very normal  post treatment.  My treatment ends in August and I'm dreading it already.  The safetynet of a place to go regularly with staff who you got to know and who looked after you is suddenly taken away, scary.   The group ownedbystaffies says to join is also what I would suggest and which I think I've already joined in anticipation!   You are absolutely not a fraud and once we have had a cancer diagnosis it stays with us always even if it doesn't show up again.  Don't underestimate the trauma of what you are experiencing.  Take care x

  • Thank you for your kind words, it really helps to know I’m not the only one to have these feelings.I felt very protected while I was having the radiotherapy, everyone was so supportive. I have different support from family and friends, but they don’t seem to ‘get it’. I have joined the recommended group and I am finding it helpful. I have read the paper After the treatment finishes - then what, and it really resonated with me. I hope you’re doing ok. X

  • Hi Jenliveh, it's a tough time and as I said I'm dreading it. Mine ends in August.   Which paper did you read "after the treatment ends"?  I'd like to have a look at that.  I'm a realist so I know that my mole was removed, 3 lymph glands were taken out and I've had a year of treatment and clear scans so far but the chances of recurrence are high so I feel I'll never be over it.  X 

  • Hi I feel for you. The paper was recommended on this forum but I can’t find the link. If you type in After the treatment finishes then what? Dr Peter Harvey, on Google the link appears. X

  • After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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