Hello everyone. I've recently had a colonoscopy and a cancerous polyp was found. I'm now waiting for results of scans. Anyone else going through similar? I'm sick with worry and fear. I'm finding it so hard to get out of bed in the morning, I just want to hide away under the covers. My imagination is running riot and I'm convincing myself that that the cancer has spread everywhere! It's just all so terrifying.
I have been feeling exactly the same. Had my appointment with the surgeon yesterday. Will be having an op to remove part of rectum and a temporary ileostomy. They were confident it hasn't spread, so I mainly felt relief. Now after reading up on living with a stoma ,I'm petrfied again. I need to stay off my phone. Like a lot of people on here have said, you will feel better when you have a plan. I found reading a book in bed and leaving my phone downstairs helped take my mind off things and helped me sleep.
Debbie
Thank you for responding to my post Debbie. I'm so pleased to hear that your surgeon is confident that it hasn't spread, , that must be such a relief. Try to keep reminding yourself of that. It's very hard not to go looking up information but often it can lead to information overload which isn't helpful. As I keep being told, try to just take one step at a time. It's all so terrifying though isn't it. Thank god for this website and the wonderful support we can get from each other. Will be thinking of you, stay strong and we will get through this. xxx
Hi Josianna
I have Lymphoma, been living with it for 3 months...only in the last few weeks have I discovered what it was and been pocked, prodded and my ass exposed to the world to get all the info the doctors want to give me the right treatment...
And yes I too played the google game and some of it made my imagination worse...mind racing full of sinario s and what ifs. Doctors can be just as cryptic in answers.
I try to drown out those thoughts by playing games on my PS4 or make little projects around the house so that I have no time to think...having a big hairy dog helps too
We're all scared of not knowing and its a natural thing.. don't hide and don't let ppl make you feel any lesser..
Be strong..x
Hi TKjedi, I am Mike and I help out around our various Lymphoma groups. I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin's Lymphoma Stage 4a so I know this journey well.
I had a look at your profile and see that you have not found our various Lymphoma groups.
These are links to our groups if you think we can help out.
Hi Mike...very cool to meet you, and thanks for your suggestions as I was have trouble trying to find one for lymphoma...I will check them.
Many thanks
If you know the exact type you have I can advise as to the best group
Hi TKjedi,
Thanks for your response. Yes, I feel the same way about all the needles, cannulas and blood tests that have been done. I know they are for a reason but I'm really fed up with them. My body doesn't feel like my own anymore. Trying to keep off Google now and just stay as physically strong as I can in preparation for the inevitable operation/treatment. I'm worn out with worry/fear though and praying this is all sorted soon. I'm glad you've found ways to help you stay sane through all this. Hope you get your treatment started soon. Let's all try and stay strong, whilst we get through this. Sending you my best wishes. x
Hi Josianna,
I can understand...I'm still feeling aches from the bone marrow biopsy, but it's all part of the info gathering and the feeling that everything is off, like I have no control over what is happening and I'm just along for the ride...I truely hope things will work out for you...stay strong..xx
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