Hi everyone,
My family and I are just starting out on this journey but it's not going to have a happy ending
At the beginning of August we found out my dad had lung cancer, and it's really rocked our world. He's under-gone a PET scan, CT scan, Biopsy and Lung Function test and we found out on Wednesday that it's treatable but not curable.
If he has treatment then he could have 12months or more, if he doesn't then we are looking at months.
I'm so heartbroken, feel completely numb yet cried solidly for an hour last night. I really don't want to lose him but I know that I am going to, and that is so hard to take in. I feel like I'm pretending it hasn't happened. Does anyone else feel like this??
We also found out something else that has really shocked us and my dad is furious about it. Back in 2017 my dad had the same symptoms he has now (hacking cough mainly) and he went to the doctors. They sent him for a chest x-ray, and told him it was clear and gave him cough medicine etc.
The cough cleared up, although it returned again and again. He went to the doctors again with it in January this year and was told it was something called Post Nasal Drip (no chest x-ray given this time).
When the cough returned again that's when he went to doctors who ordered another chest x-ray and we found out about the cancer.
Anyway, on Wednesday my dad asked the consultant if they could have a look at the 2017 x-ray and compare it with the 2021 x-ray to see if it showed up the cancer. The consultant did just that and confirmed that the 2017 x-ray does indeed show something suspicious. She is having it re-examined by another radiologist for us.
If it does confirm our suspicions then my dad has had no treatment for 5 years, no follow-up calls for 5years. Nothing.
We are absolutely devastated that this tumour has been missed for 5 years. My dad is absolutely heartbroken and angry. He has said that if it is indeed confirmed as cancer on the 2017 x-ray then he is going to file a medical negligence/misdiagnosis claim.
He is going to give this cancer a good run for its money. He wants to see me lose weight, he wants to live to see his grandson finish his degree but fears he may not live that long.
I hope he does, I tell him everyday that I love him and I'm very proud of him and that he's my hero ️️️
#wewillbeatthis, #strongertogether
Hi BigGirl28, so sorry to hear about your dad and the transpiring information about his early X-rays. This unfortunately does happen and needs to be checked out further.
Amongst other things I have asbestos and I found out totally by chance due to ongoing treatments for my type of blood cancer.
You do need to take some advise as to how to proceed with a negligence claim to ensure it does not get bogged down in the system and not get highjacked by unscrupulous solicitors.
I eventually (after a few years) got compensation from my ex employers for the asbestos exposure but it was done through a specialist reputable company.
You may want to call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see if they can give some advise. The service provides lots of cancer information, support, financial guidance or just a listening ear.
Talking with other walking the same support journey may also help so do check out our Supporting someone with incurable cancer group where you will connect with others supporting family.
All the very best ((hugs))
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