I don't even know if I should be posting here - I feel like such a fraud for feeling the way I do when my diagnosis wasn't even full-blown cancer.
I'm struggling to cope following my (still ongoing) journey. I've been left a shape I can't stand to look at in the mirror, and I feel disgusting. I haven't been able to let my husband get close to me because I just can't understand how he could possibly still find me attractive.
I found a lump just before the first lockdown, and had a lot of tests/scans. Just after my 31st birthday, I received a phone call to tell me that the initial biopsy had come back with DCIS and was pre-cancerous; I was on my own at home and couldn't get hold of my husband until he got home from work. After a load more tests/scans, they determined that I had an 11cm mass along one of the ducts, and that a mastectomy was my only treatment option. When I saw the plastic surgery team I was told I was too fat for immediate reconstruction (although when I questioned it they admitted it was actually more due to an existing medical condition I have making the surgery too risky in covid times). Near the end of July, I went into hospital for the surgery. Due to restrictions, my husband wasn't allowed in the door at the hospital, and the next time I saw him was 2 days later when I was wheeled out to his car. Seeing the consultant later, I was told that I'd lost 1/2 a stone during the surgery, and that it was medium and high grade DCIS rather than just the medium they thought it was. Following my surgery, I have had massive problems with healing, and in fact the flap they used to seal the wound ending up dying so I've been left with a large scar and still ongoing healing (16 weeks on and I'm still having to see nurses 3 times a week for dressing changes). I'm still waiting for my permanent prosthesis, as during my fitting this week they didn't have any the right size, so I'm still finding myself subconsciously checking my reflection every time I see it to check that my silhouette is at least vaguely symmetrical; its bad enough that I caught myself doing it three times just walking back to my car.
I just feel like I should be coping better when it wasn't even full-blown cancer. I referred to it as cancer once at the hospital and the specialist nurse told me off and insisted I call it pre-cancerous changes. I've lost all my confidence, and am avoiding going out unless I absolutely have to (obviously, pre second lockdown); the only people I've really seen are my parents and my in-laws and I worry friends are thinking my avoiding seeing people is personal. I'm relying massively on my husband for support, and I worry that it's taking it's toll on him. I'm not sleeping properly and find myself just bursting into tears randomly, and I already weigh more than I did before the surgery due to my diet going out of the window and reluctance to leave the house to exercise properly. Wearing a bra is still uncomfortable and I'm hyper-aware that if I don't wear one around the house all my clothes just emphasise what I've lost. I don't know what I can do to get myself to accept how I look now and regain some confidence.
All of the other posts I've read on here are people who have had a much worse time/diagnosis than me, and I'm sorry for wasting your time. I'm just hoping someone out there has been through something similar and can give me some hope.
Hi Metalminions welcome to the forum and I am so very sorry to hear how you are feeling. As far as I am aware you have had Cancer and having a Mastectomy confirms that it needed to come out otherwise why have the op? The Nurse has put it to you in such a way that it has made you believe somehow that you are a fraud well Im telling you you are not and you are as entitled to be here as anyone else so stop putting yourself down. Cut yourself some slack and acknowledge that you have been through a huge trauma both physically and mentally and still having issues by the sounds of things.
I dont think you will be alone in the feelings of change in body image as many women experience that so you are not alone. Have you thought of speaking to your GP or having some counselling at all it sometimes helps to talk things through with someone else not connected to you. Its ok for you to have these feelings and its also ok not to be ok. Wearing a bra around the house is the first step to healing and maybe thats a place to start it may be uncomfortable for you but even for a short time may help.
In the meantime stop beating yourself up and I'm sending some huge big hugs your way for now.xxxxx
Hi Metalminions, you may feel like a fraud, and there may be others reading this that think that as I'm a man, I have no business being involved, but you have been through a very stressful experience; stressful both physically and emotionally, and all this at a time when the support that you would normally expect isuch as loved ones being present, simply hasn't been allowed. It certainly sounds to me that the comments that you had from the nurse was insensitive to say the least, and the reply from Granny59 was much more helpful.
Whenever something like this happens, we experience all sorts of emotions, and because of this it is difficult to believe that anyone else can understand what we are a experiencing, and so it becomes that much more difficult to talk to those we would normally turn to for help. They in turn, will probably be afraid to talk to you, but this is likely because they don't know what to say, or are afraid of saying something that might make the situation more awkward, so if you do pluck up the courage to broach the subject, try first of all to let them know that it's ok if they do feel this way, and that you will understand if something doesn't come out as intended, or just sounds awkward. Very often, it is our loved ones who find it just as difficult , or even more so, than we do, to come to terms with what has happened. It is not unusual to feel as though you have become a burden and that can easily blind us to the love and support, that our loved ones desperately want to provide. Hopefully, there will be someone on the forum who is more able to identify with your experience, and is willing to respond more appropriately than me.
Hi Metalminions.
I have read your post.. I feel the same bad about myslef even if I'm extremely skinny. My story is much longer that I wrote on my profile but I don't have strenght to write everything I might needed. I lost so much weight after chemos and due to complications and my IBD problems that I'm only 42kilos now and I see a sceleton every time I look at myself. I miss my long hair and my previous body which does not look the same now.. I dont have a sense of touch on mastectomy site and feel my rib cage through the skin. My arm is disabled after op and radio. I cannot xpose myslef to my hubby too as I look so bad. You are not alone. I don't leave home even if wanna come back to work soon. Struggle with basic housework. I am thorn like you. Trauma of pain and hospital addmissions is overwhelming.. you are not alone..
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