Coping with relaps

Hi Lellynelly

I'm very sorry to hear that you have suffered a relapse. I can't begin to imagine how you must feel as I haven't been in your position but I noticed that your post hadn't had any responses and I didn't want to just scroll past.

I'm sure that sadly there will be lots of people who will have had the same thoughts as you. I think from your post you're saying that there might not be any further treatment you can have. If I've got that wrong then I'm sorry but pleased that there is treatment available.

When you feel ready, you might like to join the living with incurable cancer group which is only available for patients to post in. This makes it a very safe and supportive place to discuss your worries. Lots of discussions revolve around doing things that are enjoyable as well as discussing the more worrying side of having an incurable diagnosis.

If you'd like to join just click on the link I've created and then choose 'click to join' on the page that opens. You may have to wait a short while for your request to be accepted and then you can post in just the same way as you do in any of the other groups that you belong to.

Sending a ((hug))

Thanks. I have now been told I am terminal. Thanks for the link to the other group. I’ll have a look

Being told that you're terminal must be very hard to get your head around Lellynelly but I'm sure you'll get fantastic support in the living with incurable cancer group.

x

I have sent a request to the other group but waiting to be accepted

I definitely wouldn't make any assumptions regarding treatment.  I know someone who had CAR-T fail last year who went on to have a successful SCT this year.  Guidelines change constantly.

When I was first diagnosed I was far more concerned about my family than myself and I have found that to be very common.

Hi Lellynelly,

This is a heart-breaking experience for anyone to endure, and there will be many like me who can only begin to imagine how much you and your loving family have suffered so far. it is at least, encouraging to hear that you have family that mean so much to you, and you to them. i think that how we remember our loved ones can be a source of comfort, and that building those memories together may help you all to perhaps see the future as not quite so bleak as it probably feels right now. A good starting point may be to think about what it means to be part of a loving family, and how many others don't have that experience. Then maybe you could consider what you think of as your most treasured achievements, those that are just yours, and those that have been shared with someone who means a lot to  you. Perhaps consider the part that each of you has played in creating a loving family, and maybe, what you have done for others. There are  often small things that get forgotten, but sometimes these small things mean much more than we realise.

Am I looking at things through rose-coloured spectacles, possibly, but every life is special in its own way?

My thoughts are with you, warmest regards to you and your loved ones.