2 years ago my husband was diagnosed with Mesothelioma. He had 6 chemo sessions which worked remarkably and life pretty much went back to normal, then it returned. They put him on a course of chemo which after 3 sessions it was stopped as it was was not working. And they have stopped all treatment. I am finding it increasingly difficult to mentally cope. To look at him it’s hard to believe he is ill as is still playing golf. He has a drain fitted and is draining out fluid once a week. Nobody has explained what to expect next To be honest I am scared, is it normally like this.
Hi
It's natural to be scared when you don't know what's happening. I see that you're a member of the mesothelioma group and it might be an idea to also post your question about what happens next there as well. Clicking on the link will take you there.
Could I also suggest that you might like to join the carers group which is a safe and supportive group to share your worries and emotions with others who are looking after someone with cancer.
To join this group just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself by selecting 'start a discussion' and respond to existing posts by clicking on 'reply'.
Sending a supportive ((hug))
Hi
I am really sorry to hear about your husband and how you are struggling. I can’t help on the what next and I hope latchbrook’s advice to join the Carers group is helpful.
If there’s no treatment, does this mean your husband is incurable? If so, I can heartily recommend you make contact with your local hospice. I’ve been living with incurable cancer for over three years and my experience of the hospice is that they help me to live life as fully as I can. I’ve had very helpful counselling, for example, and help with benefits. They work with the whole family so there’s help for everyone.
For me, it’s all about staying in the day. You don’t have to cope with more than today. Enjoy today when you’re husband is well. I don’t think I’ve ever met someone who looks back over their life and said “I wish I’d worried more”
xx
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