Cisplatin and etopiside

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Hi just wondering how others have found side effects on their 3rd cycle of cisplatin and etopiside please. My first one gave me around 20 different things, oncologist has reduced it down to 80% and 2nd one was better but i still experienced some side effects worst were severe constipation and very fragile skin on my finger tips. My third one is next week. 

Any advice would be appreciated. 

Thanks 

Amanda 

  • Hi  I sorry to hear about your challenges……

    I have been on my journey for over 26 years with 4 different cancers.

    During the treatment for my 2 types of very rare, hard to treat T-Cell Non Hodgkin’s Lymphoma's I did have had a significant amount of Etoposide (but not Cisplatin)

    This was part of my 6 cycles of very aggressive R-EPOCH = (Rituximab + Etoposide, Prednisone, Vincristine (Oncovin), Cyclophosphamide, Doxorubicin (Hydroxydaunomycin) in between December 2013 and April 2014……. 6 days/5 nights 24/7 on my 2 IV pumps for over 120hrs……. so over 750hrs over my 6 cycles and on the whole I had no real issues and the issues that did appear were all do-able.

    The Constipation risk is always there during these treatments….. I was advised to take a minimum of 2 sachets of Laxido (Laxative) ever day I was on my chemo plus for 2-3 days after and continue with one sachet ever day on none treatment days….. this combined with a good balanced diet, upping my fibre intake and drinking a minim of 2 litres of water every day did the trick for me.

    I was only bunged up on one occasion and this was fixed by having 8 sachets (an impact dose) of Laxido over 6 hours.

    Skin issues are unfortunately rather normal….. our skin is very reactive to what goes on inside our body…… good moisturising and hydration can often help a lot.

    You may want to post this in the Gall bladder cancer group as you may connect with others who are having the exact same treatment.

    Mike (Thehighlander)

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