Hi all,
I'm a 21 year old carer/companion to my mum who received a glioblastoma diagnosis in August and I just feel so lonely. At the beginning it was fine, my friends checked in on me, asked me how my Mum was but now there is very little. I live in a rural village and put my university course on hold to be with my mum which probably hasn't helped. In the first few months it was hard but I felt as if I was doing fine mentally, almost a year down the line I feel myself slipping into this depression and just complete loss of my sparkle. It's hard enough keeping up long distance friendships but sometimes my friends don't reply for days or weeks in which it's hard to keep the connection going. I understand that people don't understand but I wish I was told something different than that I'm really strong and everything happens for a reason. I don't want to be strong anymore. I just feel don't feel seen by anyone. Sometimes I just want to vent to somebody that isn't going to take 5 working days to reply.
I had mental health issues when I was a teenager and I worked so hard to get through that, I feel like I'm slipping back into that time again which breaks my heart. Does anyone feel like when they're not the fun, sparkly friend anymore people pivot to others because they're not the same person. Some weeks the only reason I leave my village is to go to Tesco and have little interaction with others. I only realised this a couple of weeks ago but I had a shopping problem, spending money to just fill this massive void in my life, thinking that if I bought the clothes others wore it would make me into a different person. Spoiler..it didn't!
I guess at the moment I don't see an end to this loneliness tunnel and it's the trenches out here. My parents get angry because they say I make them feel guilty that I'm lonely but at the end of the day it all stems from there fact that I just want my normal life back. I mean how many 21 year olds understand the feeling of having a dying parent , having to watch them decline every single day. It wasn't meant to be like this.
I am actively seeking therapy or somebody professional to talk to but they can't come to the pub with me or those mediocre things you do in friendships. I feel so alone and it makes me angry. I know I'll get through and it won't always be like this but if anyone has any advice or a similar experience. I try so much to fill my own cup, I exercise and run, I'm a keen knitter but I guess nothing can take away this pain.
Hi Knittinggirl3b2985,
I’m sorry to hear your mum is so unwell with glioblastoma.
I’m in my mid-20’s and have recently moved home to help look after my Mum. She was diagnosed with lung cancer last year, and despite some optimism treatment would be successful, it has spread and there is nothing left to do but keep her comfortable and make the best of what time is left. Like you, I thought I was doing okay, but have recently found it hard to do anything more than basic daily tasks outside of caring for my Mum. I have no energy, little motivation and see little purpose in my life other than caring for my Mum at the moment. Replying to my friends is hard, conversations are nothing more than surface level and I find myself getting angry really easily. I think I am too just lonely, with barely any friends left in my hometown, my family is all I have, and were a very small family.
I have left a job and life abroad to come home, luckily my job is very understanding so at the moment I am just on unpaid leave, but legally they have no duty to hold my job for me - which is also an added stress at times. My mum asked me last night if I felt ‘trapped’ here now, and whilst I would never leave while she is so unwell and dont regret coming home for one second, I selfishly want life to go back to the way it was before cancer, but I know that just cant happen.
I’ve been offered free talking therapy from both Macmillan and my mums hospice service, this isn't something I’m personally ready for yet, but, is this something you could explore? However I also understand the desire to have someone to go to the pub with or go on a walk, its just not quite the same…
Reading this back, I don't think I’ve necessarily given you any helpful information or suggestions, but I just want you to know you’re not alone in the way you are feeling because I too feel a similar way.
Mulli3 xx
Hello Knittinggirl3b2985
My name is Lizzie and I’m part of the team here at Macmillan’s Online Community. I’d like to offer you a warm welcome to the site and to the community. We’re glad you’ve decided to join us, and we hope you find a place where you can find the guidance and support you’re looking for.
I’m really sorry to hear how you’re feeling. It sounds like you’ve got a lot on your plate at the moment and it’s completely understandable that you’re feeling lonely.
Please know that you’re not alone, and we’re here to support you. Reaching out and sharing how you’re feeling takes courage, and you’ve done the right thing by doing so. I hope you find this community to be a safe and supportive space where you can connect with others and feel a little less alone.
As you mentioned you’re a keen knitter there is the express yourself forum that you might want to take a look at. This is a place to share your creations and connect with others who have a similar passion.
Macmillan has information about what support carer's can access and what support your mum can access if you need some practical help. Local carers' organisations may have services to support such as advice workers or support groups. The Carers Trust has information about support in your area.
It’s really positive that you’re looking into therapy and seeking professional support. If you’re struggling with your mental health, it may also be worth speaking with your GP if you haven’t already done so as they can talk through how you’re feeling and help connect you with appropriate services and support.
You might also find it helpful to look at Mind, the mental health charity. They offer a wide range of resources and support for people who are struggling with their mental health or experiencing loneliness. They also provide information about local peer support groups, which could be a good way to meet others who understand what you’re going through.
We also have a Macmillan Support Line if you have questions or would like to talk things through with someone who is there to listen. Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.
Please be gentle with yourself and remember that support is available. You don’t have to carry this on your own.
Sending our best wishes,
Lizzie (she/her)
Best wishes,
Lizzie
Macmillan Online Community Team

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