Hi there, my fiancé (M34) has had a neuroendocrine tumour removed from his liver. They only had to remove 5% of liver and gallbladder whilst removing the tumour. We were hoping this would be the end of this 8 month health scare journey, but now we’ve been told it’s a NET. I’ve read a lot online about how most NETs don’t start in the liver, so I’m mentally preparing for a primary one to be identified elsewhere.
I know his previous scans identified a nodules on his lung and I’ve made a note of other health issues/concerns over the years to inform the doctors for a full picture of his health to date. To be honest, we’re scared. We found out the pathology results from a nurse, we haven’t spoken with the consultants/surgeons yet. I made sure he registered with our local GP (moved in the last 6 months) and made them informed of his NET tumour status. Is there anything else I can do as a partner/carer for him? Or any positive info or even treatment info anyone can share please whilst we wait?
