Hi there, my fiancé (M34) has had a neuroendocrine tumour removed from his liver. They only had to remove 5% of liver and gallbladder whilst removing the tumour. We were hoping this would be the end of this 8 month health scare journey, but now we’ve been told it’s a NET. I’ve read a lot online about how most NETs don’t start in the liver, so I’m mentally preparing for a primary one to be identified elsewhere.
I know his previous scans identified a nodules on his lung and I’ve made a note of other health issues/concerns over the years to inform the doctors for a full picture of his health to date. To be honest, we’re scared. We found out the pathology results from a nurse, we haven’t spoken with the consultants/surgeons yet. I made sure he registered with our local GP (moved in the last 6 months) and made them informed of his NET tumour status. Is there anything else I can do as a partner/carer for him? Or any positive info or even treatment info anyone can share please whilst we wait?
Hi TeddyBear94
Welcome to our community, I hope you find it both informative and supportive.
If we look at the main site here we can see that while the liver is not the most common location for a NET is is still a known location so perhaps that might be something of less concern. A problem we see quite commonly is that often people will share something bad happening and it can be easy to form a picture that is worse than reality.
My wife has Leiomysoarcoma, so a ratehr different form of cancer but after two rounds of chemotherapy her cancer is stable. She has periodic scans and the real benefit there is that we would see if any of the nodules are changing.
Do you know when you will be seeing the consultant? That can be really helpful to answer those questions and often just understanding what is happening can help us feel a little less scared.
<<hugs>>
Steve
